Sorry it has been so long!
Hello to all, and my sincere apologies that it has been so long since I have been here. A lot has happened, both bad and good. My patient "George" actually passed away a few weeks ago. I felt like such a failure, but he was still able to eat and drink some foods...
Thanks a million
Thanks so much for all your kind comments. Things are going quite well between myself and the hospice department, it was all a big misunderstanding. As for George, he is still eating and drinking, and I have explained (in pretty great detail) what will happen to his...
I'm Baaaaaaaaaack!
I'm BACK IN BUSINESS! :)
So, apparently there was a huge misunderstanding, and the hospice manager thought I was telling hospice how to do their job (which I WASN'T!), but things are cleared up now, and I am back on the case, able to see the patient. I will be heading over...
Thanks ronney525 for sharing your experience! Relay calls are so helpful not only for the deaf, but also for those who can type, but can't talk! That's a great idea that I will be sure to share with my patients......now that I think about it, I'm not sure that they are the best typers, but at...
Hi, and thanks all for the great responses!
I whole-heartedly believe that it is 100% up to each individual patient. I just found it hard to swallow when she said that "MOST" people prefer.....I think it is partially because that is my JOB! To help people communicate! I also don't think that...
Thank you for your honesty Paula. I sure appreciate it! I want to provide the best services to my patients, and the wisdom of others with ALS is priceless. Thanks again.
Hi all! I am a Speech-Language Pathologist working with two patient's that have ALS (both Bulbar onset/PBP). I need your thoughts on a statement that a hospice employee said to me. Any comments welcome! :)
She said "Most patient's don't want to live past the point where they are no longer...
Well, I talked briefly to the hospice manager this morning, and she was quite insistant that the patient did not want more speech therapy, when his daughter told me that he did. The manager was quite gruff, and said that the daughter needs to talk to the hospice department, and not to me. SO I...
Hi there! I am a Speech-Language Pathologist that provides services for inpatients, outpatients, home-health and hospice (jack of all trades, master of none :)). I have been in the field for about 2.5 years, and just recently have had two patient's referred to me, both with ALS.
Both...
als
communication
communication device
death
diagnosed
diagnosis
diet
dysphagia
feeding
feeding tube
frustrated
health
heart
hospice
night
nutrition
pneumonia
speech
support
swallowing