Search results for query: *

I have just been informed by a very reliable source, that Ritulek will be funded from 1 October. If you contact your neurologist after that date, you should be able to get it prescribed.

Thought it might be beneficial for some to have a list of controlled therapeutic studies in ALS WITHOUT a benefit. Branched chain Amino acids Brain derived neurotrophic factor Ciliary neurotrophic factor Celecoxib Cyclophosphamide Creatinine Coenzyme Q10 Dextromethorphan 3,4-Diaminopyridine...

Just wanted to tell you all, that our dear CoachMegs husband, has just passed away. Prayers to her and her dear wee family.

A very big call our for our Linda, who has just had her Diaphragm Pacer put in earlier this week. I am sure she can do with a heap of well wishes. Its what this forum does best. Still praying for you Linda

I was wondering if all you wonderful people could help with a little inquiry. Tomorrow I am talking at the local MND society meeting. They want to hear about my experiences with this forum and my visit to the states to see one of my friends there. No names I promise. I think I may actually...

Health anxiety is an anxiety disorder that is often housed within the Obsessive Compulsive Disorder (OCD) spectrum of disorders. Those affected by health anxiety have an obsessional preoccupation with the idea or the thought that they are currently (or will be) experiencing a physical illness...

I have just got back from my Neuro appt and after the progression at the last appointment, I now have remarkable improvement in my spasticity and one of my pathological refexes. My final emg was normal, I discharged myself from further appointments and will be happy with " I dont know what it...

Hi all, for you people with PLS and bulbar involvement...........did your swallowing difficulties start intermittently ........just on certain foods and fine on others. I have had 3 days with terrible trouble getting certain food down. I swallow and swallow, sometimes just have to cough it back...

Ultrasound in diagnosis of ALS There has been a new article just published about the use of ultrasound to detect fasciculation. It's far more sensitive in picking up fasciculations than EMG. Fasciculations it appears has been given more weight in the diagnostic criteria for ALS. So now will...

I gripe and groan about the laws in countries like NZ, Australia and UK, regarding the absence of choice, when it comes to venting a person with Motor Neurone Disease. I really want to try and change it. Not that I have any idea how? I just Sat down with my neurologist husband and talked about...