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Before you read this... my intention was to get your opinion... however, by the end, it has really turned into me ranting about how horrible this disease is... so I understand if you don't read any further. I've posted on here a couple of times and the replies have really helped so I thought...

Does anyone's loved one exhibit a very high anxiety level when it comes to ALS? Obviously being diagnosed with ALS would cause anxiety... but I am talking about much more then that. My Mom has levels of anxiety that I have never witnessed before. She checks her mailbox 4-5 times a day, even...

This past week, my Mom has started to become more tired. She has plateaued over the last 3-4 months and then just like a light switch... she has started to become more and more tired. An example: I usually go to her house at 9:30 a.m. for her first tube feeding. She is ALWAYS awake and in...

My Mom's ALS has affected her upper body. So much, that she uses a peg tube and has pretty much lost use of both of her hands/arms. So when she has a bowel movement, I have to clean her. My question is this (and I will try and be as discreet as possible): Even when she has a very small bowel...

I am a caregiver for my Mom. She was diagnosed with ALS in July of 2009. While she is entering her 2nd year since her diagnoses... I consider this her 3rd year with the disease because I noticed symptoms for about a year before she was diagnosed. This is where we are at: My mom still lives...