Hello Ralsip. I was diagnosed 4 1/2 years ago by two neurologists both from ALS Centers. I completely understand what you are going through since I have 3 younger children. What a shot to the gut. Anyways, I have not progressed at all since my initial diagnosis. At the urging of my mother...
Hello Shelby, I was diagnosed 4 years ago and was progressing. Basically to shut my mother up I went to a holistic doctor who has been treating me ever since. I have had absolutely no progression since I began seeing him. My neurologist who is the head of the local ALS Center has no idea of...
I am very happy to hear your news. If you could please forward your strategies I would really appreciate it. I have went three years with no major changes in my symptoms. Hopefully we are on the same path.
I just got back from my Pharmacy after picking up my Rilutek prescription. Luckily it only cost me $120 versus the $2,100 the prior month. My pharmacist said that the generic version is finally available. Good news. :-)
Great attitude Jeff. I am coming up on my three year anniversary.
Have you tried magnesium supplements to help with the cramps. I used to have terrible cramps at night until I started with the magnesium suggested by my doctor. It changed my life. Only get cramps once or twice a week.
I am...
The AFO that I use and works pretty well. It was recommended by my wife who is a physical therapist. My therapist at the clinic also thought this is a good brace. Good luck!
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Hello Mike, I was diagnosed almost 2 years ago. I completely understand what you are going through. I know it's easy to say, but don't waste your time thinking about the future and concentrate on that beautiful baby girl that is on it's way. Hopefully your progression is slow and your little...