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Hi David, Sorry to hear whats happening to you, but glad you found us. Lots of information and people to talk to on this forum. I am 38, have had ALS for five years. It sounds like you're in good hands. Feel free to ask us questions, as we can all relate. Try to keep your sprits up, a strong...

Happy Birthday Al! Cheers! Les

My 2 bits worth, I've had a feeding tube for seven months now, and, as freaked out I was about getting it..it's the best thing I did. You learn how to eat (through trial and error usually) without choking by adjusting your diet and modifying the food like everyone said. But its hard to get...

hey Al, Its funny the same procedure was proposed to me, but that was before I was diagnosed with ALS. My ALS symptoms started with my right thumb and they thought I merely had nerve damage in my hand. I was sent to see a plastic surgeon and he explained that they could take the tendon that...

Hi Elaine, This retirement thing has its good points and bad points. I, like you, left work in the peak of my working years (I'm 39). I've been there 16 years and love it. The people I work with are my friends, I met my wife there. They were so good to me and would have helped me in any way if...

congratulations Al, Thats great news! Les

One more thing, the riluzol does cause numbness. if you've ever had a pill stick in your mouth or throat you'll know what i mean. it almost feels like novacane. i take it now through my feeding tube just for that reasOn. les

Hey al, i've been on tHe bi-pap for six months now and have tried everything to lessen tHe desert mouth. nothing works completely, however you do get used to it. tHe first thing i do every morning is "swish and spit" water for about five minutes to get tHe juices flowing again, tHen spend tHe...

Our thOughts are with yOu and yOur family carol, stay as strong as we know yOu are, and please keep in tOuch. les and holly

Hi, talking about symtoms and personal feelings is what this forum is for. my speech is quite bad now and eating is difficult. the feeding tube was the the best thing i did. i put it off too long and started to lose weight. eating was becoming stressful, with the feeding tube, i don't worry...