I have an appointment on Monday to be screened for the Dexpramipexole trial. I've been told--based on the medical records I have submitted and a phone conversation--that I appear to be a good candidate.
The nurse who is coordinating the study at my location seems concerned that I've chosen to...
I thought there was a "Introducing myself to the forums" sticky thread somewhere, but I can't find it. If there is one, that's where this post belongs, but here it is. (I would've posted this yesterday, but after reading of Joel's passing, I couldn't write it.)
I want to introduce myself to...
als
als?
arm
atrophy
ball
bulbar
cramping
diagnosis
do i have als
do i have als?
early
emg
family
fingers
foot
helpful
information
introduction
love
mri
music
questions
reading
symptom
symptoms
tests
va benefits
website
work
young
I've not posted in about two months because little has changed in my case. No news is good news, and I'm thankful for that. But I'm trying to prepare for what I can, and have some questions related to VA benefits for ex-US servicemen.
First, some background info that is relevant to my...
als
ankle
arm
atrophy
babinski's
bulbar
cals
clinic
diagnosed
diagnosis
disability
fingers
health
info
information
insurance
military
monomelic
mri
muscle
neurologist
no diagnosis
problems
progression
questions
second opinion
symptoms
tests
umn
undiagnosed
va benefits
veteran
wrist
It's been awhile since I've posted anything, and I don't want to leave a "hit-and-run" impression or only post bad news. (The two threads I started were "Is this PMA?" on May 25 of this year, and "Questions about the progression of this disease" on July 3. I had some mixed reactions, but most...
Once again, I find myself unable to briefly summarize my situation. Feel free to skip to my questions at the end of this long post. You've all probably read hundreds of desperate histories like mine.
I do not have a formal diagnosis, but two neurologists have now told me that they suspect...
This is my first post to this forum, and I first want to express my thanks to and admiration for all of the PALS and caregivers here. That you find the time and energy to contribute to this forum is awe-inspiring and humbling. You have my deepest respect.
I know from reading posts to this forum...