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Van has 49,000 miles, VMI conversion, white in color, no issues, runs excellent. Would like to sell it for $21,000/obo. Stephanie

Phil began running a low grade temp Sunday night, his breathing changed to labored and his O2 stats began to go down. Earlier that night he was alert and showing his great personality in conversation. His speech deteriorated completely (from mostly only me being able to understand him to no...

My husband uses a different formula now and I would love this to go to someone who has to pay for their formula. We got it for free so giving it for free.

Does anyone know of a way - other than attendant override - to stop a PALS from going any where in the permobile power wheelchair? There are times when Phil wants to leave the house in his wheelchair and we need to stop him. I can use the attendant controls but he pushes his buttons until it...

I think some of this could be FTD playing a part, but tell me I might be wrong. Phil's speech has gotten so bad now that when he talks it sounds like one big mumble and I can't make out a single word most of the time. I ask him to speak more clearly - one word at a time and sometimes he will...

After so much progression with Phil's bulbar onset just now is he getting the very excessive have to hold a napkin to his mouth all of the time drooling. Prior to the last couple of days he did not have any problem at all with it. Right now we are using atropine drops. My question is this --...

For lack of a better phrase - obsessive compulsiveness. Whenever Phil gets something in his mind he wants to do -- like right now it is 10:40pm - bedtime - and Phil has decided he needs to clean the white wall paint off the arms of his wheelchair. I have tried several times to talk him into...

Sometimes my husband gets an idea in his head and will not take no for an answer. So far, I have been able to smooth talk him out of it or fold and take him where he wants to go. The problem with folding is several times now I have missed activities or commitments with our kids in order to...

I know there is a complete forum devoted to FTD, but only a small portion is for ALSFTD and it isn't very active. Al and other moderators, and forum members, is there enough ALSFTD patients and families to have a sub-forum on here? My husband's mental capacity is declining rapidly now and I...

We are trying to make a decision whether to continue my husband's chemotherapy for stage 4 kidney cancer or not. He has been on it since Nov last year. We are concerned about his quality of life due to him staying in bed and sleeping so much. The chemo is a daily pill he takes for 4 weeks and...