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  • Users: LornaDoone
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  1. L

    Dealing with Diarrhea

    Uggh.. so it's a rush to make it onto the commode. We succeed 50% of the time. Rush to the bedroom, get her onto the lift and pants off.. Oh Poop! We didn't make it. UGGH. Ok, so any suggestions?
  2. L

    Our Community - Thanks

    I just wanted to say that we have a lovely community here. To me, it's the people that make this a fantastic place to hang out. I think most of us here have someone, or group of someones, that make us smile. We look forward to catching up with. We have a lot of really strong personalities...
  3. L

    Money Does Not Grow on Trees

    So, we have decided to not get a wheelchair van. And my PALS is NOT happy. Quite upset. We just feel that the expense is not reasonable at this point in her illness. We should have considered getting one a year or two ago. But she didn't want one. She thought the expense was too much...
  4. L

    Debating a Power Chair.. WWYD

    My PALS is unable to walk, and move her arms much. She does puzzles and gets tired out moving her arm just across the table to push a piece into place. Her fingers can not pick up a piece. The dexterity is gone. She is currently feeding herself, but its a balancing act between the fingers...
  5. L

    Eye Tracking and Ipads

    Can we do this? What do we need to buy? We have bought an Ipad and hoping we can set it up to use with eye tracking. *fingers crossed*
  6. L

    Do you have familial ALS? Or know of a family?

    I am looking for information on how cases of ALS start in familial cases. Does the progression mostly start in the same locations? We have a new family member that I suspect may have it and am looking for information on familial cases.
  7. L

    Pssst....Pass it on

    I just found out a dear friend, Sharise, has passed away from this dreaded disease. I wanted to share a little story about how we met. You will get the title of this thread by the end of the story. I was so sad about this and was going through this site trying to seek some comfort. And...
  8. L

    CAREGIVER ROLL CALL: How's everybody doing?

    I wanted to start a thread and see how everybody is doing? Check in and let everybody know what's going on? ALS related....... Off topic........ it's all good. What's on your mind?
  9. L

    Wheelchair Van Needed in BC, Lower Mainland

    We are in the Lower Mainland of BC and are looking for a wheelchair van. We are interested in purchasing a used one or even renting for a week or two here or there. We have checked out Sidewinder and are looking into other options as well. Thanks
  10. L

    Your crap threshhold?

    I'm curious for Caregivers, how much abuse will you take from your PALS? Kind of touchy because with FTD and dementia involved, there certainly will be a range. But, extraordinary crap is what I mean.. My Story: Mine gets super cranky and *****y. However, she has always been this way to a...
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