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Oh yah.. and vomiting. This is tough! She can't always do it and we need to get her bent over.. Poor woman

Uggh.. so it's a rush to make it onto the commode. We succeed 50% of the time. Rush to the bedroom, get her onto the lift and pants off.. Oh Poop! We didn't make it. UGGH. Ok, so any suggestions?

I'm dreading this stage boy. My pals is almost at it. It's scary to see how laboured their breathing can get at times eh?

I feel like a "senior" member.... having way too many "senior" moments

I'm cracking up now.. Listening to my daughter clean her room, grudgingly. BAM... SLAM... ha ha.

I am back indeed. I need to mind my p's and q's though. :)

When we got the feeding tube, it alleviated most of my pals gas problems. We just take the cap off and it lets out bubbles, etc. Sometimes metamucil is used to give firmness to the bowel movement. Can you use bananas in a blender with the liquid meals?

I know that a decline in FVC could account for headaches because of the CO2 buildup that is normally expelled easier. When my pals got on her bipap her headaches declined and she had a bit more energy. Took my pals awhile to agree to use it though. Now she goes off and on.

OUCH! Thinking about you Barry.. Hope you're doing OK. oxox

Lots of love to you Kathi.