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cough assist and suction machine I use the cough assist followed by the suction. The cough assist pulls up the mucus and then I use the suction to clear my mouth. I only use the cough assist in the morning and at night. I seem to have lots of mucus in my throat after using the bipap. The...

Thanks for the good ideas, I am losing my independence and that is what's really bugging me. My friends are still working so until I get a caregiver, I am pretty much on my own during the day. I know it's just a period of adjustment for me. thnanks Anne

The new year has not begun well for me and I am eager to hear from PALS about the things they do when they feel overwhelmed or depressed. I have bulbar ALS so I can't call up my friends just to chat as my speech is incoherent. I can still walk with a cane but my condition took a downward turn...

I didn't need to buy larger shoes because my physical therapist fitted me with ankle braces that can be trimmed to fit your foot exactly. She first asked me my shoe size and brought the brace to my house. I put my foot into the brace with my socks on and she traced around my toes with a...

I was diagnosed in Oct.2006 and just had a PEG placed two weeks ago. I would still like to drink some liquids but find that when I drink and swallow, my back teeth seem to bite the insides of my cheeks. Has anyone else experienced this? Any remedy for it? thanks

Sex with ALS partner You all sound like very loving couples. Since my ALS diagnosis I believe that my husband and I have never loved each other more. If your husband wants the intimacy, even with ALS, those are healthy and powerful feelings. To me that's "Living with ALS" not Dying with ALS.

I had my feeding tube placed two weeks ago and am just now beginning to feel good. I had to visit the emergency room right after the procedure due to fainting and then fainted again resulting in a hospital stay overnight. Several home healthcare nurses have visited me and offered excellent...

Thank you for the advice about eliminating the tape. I had the neurologist cut the tube shorter, too. I think that day by day I will be more adjusted to the PEG. Lots of things have been happening and I think it just snuck up on me and knocked me cold. I am lucky to have my family to help me...

I get Botox for the saliva problem and find that after a few injections, the doctor had to increase the dose to get any effectiveness, Mine wears off after about 8 weeks but they only want to put it in every 3-4 months. It works, but there is still some saliva-- enough to need a hankie to pat...

thanks for all the good advice about the PEG. I was back in the emergency room today due to trembling limbs, locked jaw and nausea. They think I am experiencing anxiety over all the changes in the last week. Reading all your advice about the PEG getting better makes it so much less...