Search results for query: *

:cry: Sadly my mother passed away peacefully in my arms on Easter Sunday. Many thanks to those of you who have answered my questions and supported me through this time. Take Care of Yourselves. Tracey

Mum saw her specialist. (the woman with the bedside manner of a maggot)! However she kindly had some advice this time. Botox in the salivary glands. I have read on here before some views, but could not find them. I remember that it works either very very well or could be more of a nuisance with...

Not been a great couple of weeks here in NZ. Mum has been in and out of hospital after her suction machine failed! Meetings with hospice and the multidisciplinary team have got more supports on board. Yah. She is losing so much weight due to not using the Fortisip or Ensure. She believes that it...

Its been some time since I posted. Mum is coping with her peg, but was losing weight, so is now hooked up to it for hours at a time. She had a nasty fall down a 6 metre bank and of course with no voice could not call for help! She refuses to wear her emergency alarm! Mucous is a massive problem...

At last we have a diagnosis :( and how quickly since then has my mum started to decline. Today she is worried that she is unable to swallow at all, and tells me (well writes me) that she is not breathing well. I understand there is cpap,is that the same at bpap, and what can she use throughtout...

:( Today we met with the neurologist and mum was diagnosed at long last with MND. It did not come as too much of a shock, but we are very sad. Swallowing has got worse along with her breathing, so sadly having her hip replaced which has been causing her immense pain cant be done. Limbs are...

Mum is still waiting for a Diagnosis, but with her failing ability to swallow, and after seeing her GP today she was asked to go straight to hospital with a view to having a peg inserted tomorrow. We dont really have any idea what to expect. Her only other symptoms presently apart from fatigue...

I've been browsing the posts for a couple of weeks now. We live in NZ and have not heard of this Bulbar Onset of MND. However I am interested to know more. As I posted once before my mother aged 72 had a rather sudden onset of Bulbar Palsy. Slurred speech, tongue atrophied etc, Now after about 6...

Hi there, what an immense amount of knowledge you all have and I really need some answers that we cant get from my mums neurologist. My mother was a fit and active 72yr old, about 8 months ago her speech started to fail, she got more and more slurred till more recently in about the last month...