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I had fluoroscopy this week showing at least half my diaphragm is paralyzed. I will be having a tracheotomy Friday and use a ventilator at night. My pulmonary specialist feels this will help my daytime functioning. Have any of you had any experience in this area? I would be interested in hearing...

Is anyone out there with PMA considering a lithium trial in light of the recent study in ALS? I am planning to start. I was going to start tonight but my local pharmacy did not carry the low dose tablets suggested. I will certainly let you know if there is any positive results. Mark

Hi: I was wondering whether anyone having PMA has had experience with Rilutek. I have been taking it fairly regularly for about six or seven months. I have not seen any slowdown in my progression of symptoms. However, I have been off it now several days and have significantly more weakness...

Hello: After several years of pursuing a diagnosis and finally being told I have a variant of progressive muscular atrophy, a muscle biopsy at recent knee replacement surgery suggests the possibility of a toxic or drug-induced mitochondrial myelopathy. Has anyone had any experience with this...

Has anyone had any experience having a vehicle modified to accommodate severe weakness in the arms and shoulders as well as hands? I've found some websites that mentioned some type of joystick arrangement. No one here in Prescott, Arizona does this type of work or at least I haven't found...

Since joining, I have had difficulty in trying to understand the organization of this website. Are there any clear, concise instructions which might help. Do others find it as confusing as I do? Clearly it is very valuable to all of us to participate. I would appreciate any guidance about...

This may be a repeat because the program, shut me down in mid-composition. I have recently been diagnosed with bi-brachial amyotrophy, a variant of progressive muscular atrophy. I would very much appreciate any input from others regarding coping with this condition both physically and...