Search results for query: *

Hey all I just wanted to take a minute and let you PALS/CALS know I think of you guys so much and miss this forum. I see you guys are still busy in this part of the forum so I wanted to make sure all of you saw that I love you all and miss you all....and thank you for all of your support you...

Hi PALS and CALS, I have organized a Skydive for ALS in Cedartown, Georgia tomorrow. We are raising money for ALS TDI. I am making handmade shirts for everyone who is jumping to wear. If you would like to be honored or have a loved one that you would like us to jump in honor or memory of, I...

Hey party people, I have been taking 20mg steroids twice a day for autonomic neuropathy affecting my blood pressure and body temperature. Does anyone else have this problem and is it related to my nerves denervating? If ya do let me know how you monitor it and how you are treated for it...

Hey everyone, I need prayer today. Its been 6 months goodness it hasnt felt that long. Please pray for me this morning I'll be getting my 6 month follow-up EMG. I hope this is my last one geeze I'm tired. Anyway I just hope my EMG doesnt show any active denervation now. I feel pretty good no...

Hey you guys, Sorry for being a stranger lately. School and life is just so crazy right now. I wanted to come and update my story for those that have been there supporting me and following me through all of this. I had my another check in with my doctor yesterday to test my strength, reflexes...

Hey everyone just wanted to give a quick update for yall peeps. So everything is going really well with my new drugs. I've been off my pain meds for 9 days and have no pain or discomfort what so ever. I feel absolutely normal again except for slight fatigue. I speech is totally better. My...

Hey all, You guys know me and I know I dont have an ALS diagnosis but there are no forums for MNM believe me I've looked lol so I can quit bugging you folks. Being that I dont belong anywhere...CIDP folks dont want me, yall tolerate me lol.. just have some questions. Now that I know I have...

Hey you guys, So I started my infusions with my Naturopath MD guy in Atlanta yesterday. That took forever. I got a nutrient push, phosphatidylcholine push, and 800mg glutathione. I had a crazy reaction to PhosChol made my mouth taste like plastic and it burned through my picc line. It took...

Just a quick question.. I am having these thrush like symptoms my mouth is on fire all day and my tongue feels swollen and is coated. Now its even more difficult to talk than before. My throat feels like it has cotton ball back there and my lips and chin and top of my forehead is numb. I know...

Re: I Need Everyone's Prayers Thank you Ms. Linda...I started my steroids yesterday...only slight improvement in energy and a little with my speech. My leg is ok and my arms havent fallen asleep since Michigan which is huge bc they have fallen asleep every single night since January. I...