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Just throwing this out there..............I called ALS Clinic and asked if there were any kind of support group for kids. She said no. She said they were more than welcome to attend the adult support groups.............I dont think so ! Do you think if we started a forum for kids/siblings of...

I have 3 books , ( 2 ) Tales from the Bed by Jennifer Estess and (1) I Remember Running by Darcy Wakefield . The company mailed them to me by error and told me to keep them so I thought I would offer if anyone would like to read one and then pass it on .........................let me know...

My family member has been doing some research . There are 2 promising treatments that a doctor in naples, florida does. They are iv injections of acetylcysteine and glutathione. A phys therapist has a client who has had als for 12 years says due in part because of this treatment. Anyone heard of...

My family member has been doing some research . There are 2 promising treatments that a dr in naples, florida does. They are iv injections of acetylcysteine and glutathione. A phys therapist has a client who has had als for 12 years says due in part because of this treatment. Anyone heard of...

We have 2 children . 10 and 13.............their dad just diagnosed with ALS ,contained in mouth as of right now. What do you tell the children? The truth, a lighter version of the truth or as a need to know basis.?...........Please, please I need your guidance..........Blessings, Cate