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Dear Everyone I have been so busy, looking after my second best friend, who is elderly and very frail, as well as visiting Joe, I have not been able to come back here for a couple of weeks. Joe has been in the ICU now for a month, after getting aspiration pneumonia on July 4 (he'd had it at...

Hello again, everyone. I "left" abruptly in the middle of a discussion of what to do about my friend Joe's mucus problem. Everyone's advice was so helpful and I printed it out and gave him the sheets to read. But I have schizophrenia and had a relapse under the stress of it all. Luckily, other...

My friend Joe wants a vent; he wants to live. I know that. The trouble is that he cannot speak or eat any longer, though he uses a feeding tube and a laptop speaking device and is otherwise still ambulatory. However, I have gone into his apartment to add Jevity to his tube-feeding apparatus at...

My best friend Joe has ALS and my friend Karen and I are the only ones who can care for him. He has a feeding tube but doesn't want to use it till it is absolutely necessary. Meanwhile, he keeps making "mistakes" (his word) in what he chooses to eat or the care with which he eats it and starts...

My friend J can't adjust to bipap...Facemask just doesn't work, too drying at first then too much humidity, feels like he is going to choke. Didn't like nasal pillow the first 15 minutes of trial, and no one has tried plain nasal mask...No one is even encouraging him to try the nasal routes...

I have narcolepsy and believe it or not, Provigil did not do much for me. But "normal" people claim that it helps them perform better, and I wonder if it wouldn't actually be quite helpful in ALS fatigue. Columbia is studying it for this purpose, but I'm interested to find out anecdotally if...

Is dementia more common in bulbar ALS? I worry about that with my friend, because his memory seems so bad, though what I've read about ALS is that it is not memory-related, not like Alzheimers at all...So maybe it's just my worry that makes his memory seem worse than before. Or maybe it is the...

Hi, this is my first post in a forum of this kind. My best friend, 51, has ALS. He was Dx'd in August and has gone downhill very rapidly since then. Even though his only real disabilities right now are his speech, which is very slow and extremely slurred, and some difficulty with swallowing and...