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I generally wouldn't put things the way Skipper does when you make her angry, but I can't disagree with her sentiment here. Nothing you mentioned should have brought you to an ALS/MND forum. You sound like you have good medical care and have been checked out well, and I'm sure neither of them...

You are right about BFS destroying people's lives with anxiety, so I let the post through, sans links I am curious though, why not post under the account you made here originally?

There are only two of us, so it just comes down to when we get a chance to login and notice your post is waiting.

ECPara has a good point, and you should listen to him. You have problems that feel much more than they show up on tests, which is also a great sign of not-ALS. I would add that you should consider the possibility that you have a mix of anxiety, BFS, and perhaps some underlying problem that is...

Perhaps because PLS isn't a treatable option, insurances don't find the test medically necessary? I came to PLS through the HSP route, so I never ran into this issue. It was an expensive gene test that I had to wait for.

Thanks for the news, Al. I wonder when we finally understand CFS, Fibro, BFS, etc how many different underlying causes there will be for all this.

Beky exists quietly in the background for the most part these days. I have a backlog of posty things to do - the PLS forum sticky is still only half done, and I have one brewing for DIHALS, too. My life is very busy though, so moderating takes up most of my forum time here. I keep saying "soon...

Seriously! When I was a teen, my FVC hit the point you are at due to acid-induced asthma. To keep it under control, one of the things I had to do was start getting driven to school to avoid the cigarette smoke at the bus stop. Smoking yourself while struggling with your FVC is certifiably...

There is a neuro sign called something like Uthoff's sign - hot makes you weaker. It can happen with UMN damage.

I'm sorry. :/ I am glad you feel free to come here for support.