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Ann, my husband, Randy, enjoyed and respected communicating with you on this forum. He passed away on October 26th. He spent his last month in prayer, listening to the Bible on CD, and listening to Christian music. He told me he would see me in Heaven. I hope you are managing to keep...

I do not remember what you told me you are using for sleep? Thanks, Randy

Hi Ann, I haven't been on the site much since I can't operate the computer or ipad. Also I'm not really up to date on how you are. I'm having a hard time off the bipap and I'm not sleeping very long at night. Let me know how your doing. randy xoxo

Thanks for the birthday wishes. Hope you are doing well.

Thanks for the birthday wishes. Hope you are doing well.

Hi Ann, did you say you are not using a bipap at all? If so, are you able to sleep easily? Hope you are doing well. Randy

Hi Ann, Was thinking about you, wanted to know how you are doing. Is it my imagination or are you less active on this site. I'm sleeping alot more, but breathing and feeding are still good. I don't remember if you were using a neck brace. I'm thinking I'll need one soon. I'm still praying for...

People progress at different rates. i was wheelchair bound within four months of diagnosis. It's now seventeen and one half months and I don't want to go anywhere. Wishing you the best.

Yes bobajojo, initially was the key word. I have body-wide fasciculations except for above the shoulders now. I'm also two years past initial weakness and can't move my legs nor raise my arms. Good luck.

Hi Ann, Hope you are comfortable. Do you use pain meds regurlarly? I'm having neck, shoulder, and wrist pain. Blessings to you, Randy xoxo