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Sounds so familiar.... I'm so sorry y'all are going thru this...it sounds exactly like what happened with my husband on April 4. We had called in Hospice to help me with baths and to help get a bedsore well. That was on Monday, and they too started Morphine because he was having more and more...

SOLD: 2006 Dodge Grand Caravan Braun Entervan Was able to sell the van to a local dealer...took a huge loss, but what else is new, right? Anyway, thanks to those of you who responded with your kind words of sympathy for me during this sad time. It gets a little lonely and my heart still hurts...

Thank you... Thanks to everyone for your kind and understanding words of sympathy and encouragement. You are right, it's a really tough time, but we had nearly 39 years together, and we were so happy that our kids worried what would become of the one who was left alone. But God is getting me...

Hi everyone. I've haven't been online much the last month...my Roger lost his battle with ALS on April 5...a mere 7 months since diagnosis! But I'm thankful he didn't have to suffer too long. He was able to eat, breathe (with difficulty) on his own, and as he said, Kiss his sweetheart. That's...

My husband lost the ALS Battle on April 5, so I'm looking to sell the van we purchased in late December. It is a 2006 Dodge Grand Caravan with 16,600 miles and a new Braun conversion. Didn't have time to get an EZ Lock system installed, but it does have the tie downs which work nicely. It is...

Thanks again for the additional info, especially about the quinine. Have a call in to the doc right now, but it seems to take forever for him to call me back...I know they are busy, but don't they realize OUR problems are the most urgent? :-D ...Just kidding, of course! We will probably give...

Thanks to all of you for the information and advice. I think if they could have done the sleep study and tried the bi-pap mask and machine while he was in his recliner (which is where he sleeps...can't stand to be in a bed!)...we might have had different results. So perhaps when the doctor...

My husband's pulmonologist wants to put him on a Bipap machine...he is at 30 percent lung capacity right now. Anyway, we went for the sleep study and it was absolutely the worst night of our lives. He simply couldn't tolerate the mask at all...had a panic attack and I had to give him...

Phyl, my husband's ALS doc prescribed this drug in addition to the Rilutek. He did have diahrrea for a few months, but it seems to be levelling off now. It's hard to answer your question because according to our doc, the purpose of the drug is to slow the progression, so it's hard to know how...

Preaching to the choir.... Hey Mike! How sweet it is to find a kindred spirit, right? You are preaching to the choir, my friend, about the positive attitude shaping our lives. I've been living this way all my life, and now that we have ALS in our lives, the people around me are beginning to...