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  1. Teej

    trach/vent questions

    After being told that my husband needs a trach/vent ASAP... I was informed that less than 1-2% go on the trach/vent. This got me curious. How many of you caregivers on the forums are caring for someone on a trach/vent, and if so, how long, and what made you decide to go this route?. My...
    • Teej
    • Thread
    • caregivers children information love questions trach vent young
    • Replies: 18
    • Forum: Current caregivers
  2. Teej

    Appointment tomorrow

    Hi all, I am just writing to ask for prayers from those of you who are willing. Tomorrow we go see the pulmonologist for my husband. Four months ago, his lung capacity was about 38%, and they told us that if, by the next appointment it was below 30%, that we needed to consider the...
    • Teej
    • Thread
    • love lung capacity meds night peg scared sleep trach vent voice
    • Replies: 9
    • Forum: Current caregivers
  3. Teej

    cold feet? stretches? joint pain?

    My husband has ALS and continually has cold feet. We live in California, so it never really gets that cold, but his feet, even on the 100 degree days, are freezing. Any ideas on what to do for him? Also, does anyone get regular massages or have regular stretching sessions? My husband has...
    • Teej
    • Thread
    • ache afterward als arm back cold flu food helpful ideas information lung capacity pain planning pneumonia questions spasms swallowing viruses wheelchair
    • Replies: 6
    • Forum: Current caregivers
  4. Teej

    Support groups for children?

    Hey Everyone, I was wondering if anyone knows of any support groups for children of PALS. We have four daughters, aged 10-19, and I know they could use someone to talk to about this. Especially other children of PALS. I know it would be a great help to them. My husband has ALS, diagnosed 10...
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