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Regarding the driving issue. Here's the strategy I used. One day I took the keys just as we were headed to the store and asked him to ride in the passenger seat. He wasn't happy but did it. As we drove there I explained that our insurance agent said any diagnosis of neurological impairment means...

LibbyLu, I'm very sorry to hear of all you are going through. It's horrible but you are not alone. Please go to the FTD support forum website I mentioned above and join. It's not a replacement for this forum but an added place to understand the behaviors you are dealing with. The members are...

Dear Molly and 3G, After a long time away I stopped by the forum - because of the ALS Walk today in Tucson - yes 3G, I'm in Tucson. I am so sorry to hear you are both dealing with ALS/FTD. My hb had Bulbar ALS and FTD. He passed away in 2011 at age 62. May I recommend a second forum for you...

I haven't been on the forum for a very long time but am glad to see this. Dr. Appel is spot-on. My husband had obvious FTD first, followed by Bulbar ALS fairly soon after. Katie C says it so well. I too did a 180 degree turn in my approach to him when I realized he was not a "jerk" as Katie...

Dear Magee, I second Katie's advice. We both had husbands with ALS and FTD. I wish I had called hospice sooner. They were a joy, giving him the help he needed and giving me support so I didn't feel all alone in his care. My husband too was unable to use his speech device, used the electric...

Thanks for posting this here Katie. As difficult as it was to read, it was gratifying to see FTD, along with other associated neurological diseases getting front page press. If it helps someone identify FTD in their loved one, a doctor finally "get it", someone donate much needed funds to...

Dear Jwife, I understand what you are feeling. My husband died in January of bulbar ALS and FTD. Coming to terms with the loss of everything, especially his personality is heartbreaking. I coped by hoping somewhere inside was the man I married and I talked to him and treated him as such. I...

Dear Anne, I'm so sorry. My husband died in January of bulbar ALS and FTD, 13 months after diagnosis. The first couple months are a fog. Know that you aren't alone. Sending you a big hug from another lonely survivor.

Dear Jennifer, I haven't been online here in a quite a while. I just read your posts. While your father's symptoms are very similar to my husbands (My hb had Bulbar ALS and FTD), there are many diseases with similarities. You need help from a neurologist with experience in both diseases. Expect...

Shelley, I got so worked up and felt very guilty with every change but my hb usually took them better than I had anticipated. I hope that's the case with you. You have to get your sleep!