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  1. lgelb

    COVID precautions

    Lots of gatherings this week -- hope everyone has wonderful get-togethers. But... We are in the second largest surge of the pandemic. COVID is still the 3rd leading cause of death. 1 in 29 US adults has COVID right now. Worldwide, there are comparable numbers. Staying up with vaxx, testing...
  2. lgelb

    Au8 update

    Here. The FDA has rejected Clene's Accelerated Approval application, however.
  3. lgelb

    BiPAP sales

    I don't usually post about cash DME sales, obviously, but for anyone needing a starter/backup BiPAP, masks, etc. RespShop has a nice CyberMonday sale going on today. SecondWind has some good options as well. Note that these machines will not be portable with batteries, only for somewhere with...
  4. lgelb

    ALSA chapters that are now independent

    Just a note that as of September, the following chapters are no longer ALSA members as part of a settlement, with Jan. 31 the deadline for complete disengagement. So you are seeing web sites in different states of existence. Some now have "ALS United" in their names. Others have rebranded...
  5. lgelb

    IMPACT-ALS survey

    Everything about this European implementation of a previous ALSA-funded US survey is bogus. Being published in a clinical journal and headlined in Mobility Management as "People with ALS Report 'Acceptable' Quality of Life" is just icing on the cake. To read this abstract is to appreciate how...
  6. lgelb

    Neuralink enrolling for BCI trial

    More about the device here and you can apply for the trial here.
  7. lgelb

    iOS 17 with Personal Voice & Live Speech now available

    You can go to Software Update on your iOS device to download it. Personal Voice is the new app that does sort of accelerated voice banking and Live Speech is an app that reads text using that voice. The early reviews are positive. Once you have downloaded/installed iOS 17, the path to record...
  8. lgelb

    Relyvrio update

    An update from Amylyx adapted from two Biopharma Dive articles: Approximately 3,800 PALS were taking Relyvrio at the end of June, Amylyx said in a conference call held Thursday to discuss the company’s second quarter earnings. That’s a step up from the estimated 3,000 patients who were on...
  9. lgelb

    Immunotherapy: Blocking ⍺5 integrin

    Blocking ⍺5 integrin with a monoclonal antibody -- a promising line of inquiry...details here. As always, the caveat is that we don't know if seeing a lot of something in PALS' cells is a chicken or an egg. The next step is dosing mice. But, this study is an example of PALS' brain donations...
  10. lgelb

    Resource Respiratory testing/support, including BiPAP

    I cut more than I included and omitted the databases I use for suggesting machine volume because they can be misinterpreted if not placed in an individual context. Please ask me in VM, PM, or a thread if you need help with BiPAP (or anything else, of course). Best, Laurie
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