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Hello dear forum friends! So so sorry I haven't been on here for a very long time. It brings up a lot of pain from the past year and I am not as strong as I thought I was, so I am taking a breather. I am okay. Michelle is still very very sick. Still lead poisoning and the usual, but now she...

Hello dear dear friends. I havent been on here much for the past few months because, as some of you already know, I have been taking care of my dad 80 hours a week and then taking care of my very ill daughter as well. I have been emotionally and physically maxed out. For now, Michelle is...

Hi Dear Family! I am over at my parents now helping out for the weekends and there are two things my dad really needs help with. First off, he has a horrible pressure sore on the top of his nose from the bi-pap. It hurts! He has some medication that his doctor has given him, but its not...

Hi Everyone, My dad is in the hospital right now because he cannot urinate on his own. They put a catheter in and there was blood. He had this problem one other time back in Sept. right before he was leaving for the hospital to get his PEG. We wrote it off to stress. He is currently not in a...

Hi forum family, As you know, I am so freakin busy with my daughter being sick that I dont come on here as much as I would like, but I told my mom I would squeeze in a moment to ask a question. Now, my dad. He is having falls again, which we all know are typical. Now his falls have progressed...

Hi forum family, Just a quick note. I have been in contact with people who know Iris and I have been told that she is back in the hospital for med adjustment and is doing just fine. If she is going to be a while, I am trying to get the name of the hospital where she is so we can all send our...

Hello dear forum family. Sorry I have not been on here so much lately, as many of you know I am not only dealing with my dads ALS issues but now daughters health issues as well. I have a very full plate, and by the time I get a chance to get on here I am so exhausted I am literally out like a...

This is what is going through my child's mind these days. She actually wrote her own eulogy, and it is brilliant! I cannot believe this came out of the mouth of my 21 year old little girl. "In my dreams I saw you all naked before me Stripped of all your fears Your hopes, delusions...

Hi Forum Family! I have missed being here for a while, but just have a lot going on still with my daughter and my father. Here is my question for all your PEG meisters. My dad came back from his appt with his ALS specialist yesterday and found out that his FVC went from 95% to 64% just from...

Hi guys, I just thought I would start a thread dedicated to our Mr Rat, because he is in the hospital today getting his peg put in. He is in good hands with Lori his wife, but wanted to say I am sending my love and prayers to him....... He is such a great guy! Hugs to Jay! Hugs to Lori! Please...