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  1. Blubear

    Something good can always come from the ashes

    Wow lots of newbies here! And I have to say a HUGE sigh of relief to see that a lot of you whom I have gotten to know these past few years are still around. My dear Canadian friend whom I never got to meet in Victoria before you got more sick....I am so glad you are still here dear friend! I...
  2. Blubear

    Something good can always come from the ashes

    Hello dear forum friends! So so sorry I haven't been on here for a very long time. It brings up a lot of pain from the past year and I am not as strong as I thought I was, so I am taking a breather. I am okay. Michelle is still very very sick. Still lead poisoning and the usual, but now she...
  3. Blubear

    Are all cruise ships required to have accessible rooms?

    Oh YES RCCL is a WONDERFUL cruise line! They have the most modern and beautiful ships as well. Depending on your age group... if you are older say 50 plus, then Holland America. Royal C. (RCCL) is good for all ages, Princess is more for 30's and up and Celebrity is mostly 40's and up., NCL is...
  4. Blubear

    waking multiple times a night for a woman

    I dont have ALS but I do take Oxybutynin for my weak bladder. It fell 90 degrees with a horrible virus I had back in 2001. Had the surgery to lift it up in 2003 but it only helped for about 6 months. The Oxybutynin does keep me from having to get up several times a night. In fact I rarely...
  5. Blubear

    Trying to recover...

    I am so glad to see that you are reaching out to not be alone with this most important journey in your life. Educating yourself is wonderful! Also, I have to agree with Katie....You should never ever turn down any invitation right now....but, like she said, if it comes down to it and it...
  6. Blubear

    My mom is ready

    Oh Dana ~ I am sending you love, STRENGTH, and prayers for your mom's peaceful passing. Hugs, Kari
  7. Blubear

    Trying to recover...

    So so sorry for your loss hun. I am also a widow (my husband passed away suddenly in 2007 - not ALS) and my father passed away just 6 days before your husband did. My mom and I were both caregivers for my dad, and ohhhhhhhh the last 6 months were absolutely exhausting. It feels pretty strange...
  8. Blubear

    Hospice questions

    My father had a wonderful caregiver in the beginning for just the basics like bathing, shaving, help getting in and out of the car etc.... The caregiver wasnt part of hospice, but was provided by the VA. When my father went on hospice care all they did was send a nurse out to check on him, do...
  9. Blubear

    Gabapentin

    I took Neurontin for pain a long time ago, and it worked really well for pain, but I had a rare side effect from it so I didnt take it more than a few times. I didnt even know it would help with anxiety, which I take xanax for and I still was taking xanax at the time, so for me it didnt help...
  10. Blubear

    Anyone helped by ALS Guardian Angels-

    Just as well because I forgot to give Kay a call today because it was such a stressful busy day at the doctors with my daughter. Cant wait to see the video! If I dont catch it, please let us know when its up and running! Hugs CJ!
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