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Thank you Barry! Rest well. Good night, Briana

Barry, i hope your FVC reduction is temporary and caused by humid weather and stress. I'm pretty sure at your next clinic visit it will be back up. My sister is having a lot of problems with think mucosa in her throat and coughing. She feels that she can't catch her breath because of that. She...

Thank you for your reply... She is taking Zyrtec, but it makes her drowsy and doesnt help that much. She also tried Nasonex (nasal Spray) and had a lot of nosebleeding, so her doctor said to stop. Briana

My sister has a runny nose and nasal congestion (more on one side) for a few mos now. We have been to her primary doc, who sent us to ENT. ENT saying this is a part of her neuromuscular disorder, talk to neuro. He gave Nasonex spray, which is not helping. When I call our neuro, he is telling to...

Again, thank you all for the info. I've been reading a lot about ALS and just came across an article talking about the following tests (in addition to FVC) for respiratory muscle weakness: MIP (max inspiratory pressure) MEP (max exp. pressure) SNIP- sniff nasal inspiratory pressure Have you you...

Barry and Jim, Thank you so much for your reply. Are there any other breathing tests I should be asking for? FVC test is the only one we have done so far. Thank you again, Briana

My sister FVC remains in 80%, but she is having a lot of breathing problems. Recently she had a home pulse oxymetry test that showed a lot of "desaturation" events. I talked to her Dr this AM and he said that he can't give a script for BIPAP unless her FVC is below 70%. What was your FVC when...

Hi CJ, Im so sorry to hear about your brother... I'm taking care of my sister who was diagnosed in the end of 2009. When was your brother diagnosed? It sounded from your post that in less then 24 hours he was intubated and placed on ventillator. Could it be some other neurological disorder? I'm...

My sister is scheduled with Speech therapist in February. I was told that a part of speech work up is an articulation test consisting of certain words and phrases. I would appreciate suggestions where to find these words or phrases, so we can try them out before my sis appt in February. Happy...

Thank you Serenade, My sister been using the Saline bottle since May. She is also using all kinds of decongestants withoot much help. Briana