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i saw one that was purple, one that was red that said "strike out als" and another red one that said "never give up". I was wondering if there was an "official" one. personally, i like the never give up one better than the strike out one. so maybe i'll make my preference official. :)

I have a neuro appointment (first one) in a couple weeks. I seem to be deteriorating daily. I have called the neuro's office to see if they can move up my appointment, but they're booked. They did, however, put me on the cancellation list if someone backs out of an appointment. My question...

from my understanding, any use of muscles depeletes their capacity, and so building muscle by weight lifting or otherwise exercising would not work. i don't know that the supplements and roids would work if they weren't in used in combination with exercise, but i may stand corrected.

is there an "official" rubber/silicone bracelet for ALS?

Sorry to hear musicsmiles. And unfortunately, I don't have any suggestions, however, as AL said, try a search or just browse some topics that look interesting. You will learn alot about the disease and how it affects people, and maybe from that you will get some ideas. I would think that his...

Hey Barry. Thanks for the suggestion. I will look into the possibility, although if it were a genetic defect, I would think it would have started from day one of life. This is a relatively new thing for me (inside the last 12 mo.)... thanks for the tip, though. ---todd

Hi Teej. Thanks for responding, and I'm more concerned with getting a proper diagnosis than taking away hope at this point. And especially thanks for the Mercury and Kennedy's info, I will definitely look into that. Any cramping that I have is much less severe than a charlie horse, and...

No, I haven't had any tickles in my face or anywhere else. Just the jittery jumping feelings of the muscle fibers. Although we may be describing the same feeling. I could see how the feeling of squirm could be interpreted as a kind of "tickle".

i mean like one or several muscle fibers are twitching, but there are a ton of these all happening with no coordination between them. like minature firecrackers exploding. not enough fibers to really contract the muscle, but enough to make it kind of squirm. it feels like if you had a piece...

Hi Guys. I'm waiting for an appointment with a neurologist for ALS like symptoms, and so I've been lurking here for several weeks. My symptoms started 9-12 months ago. The first thing I noticed was weakness/fatigue in my right hand while twisting a connection onto an air cylinder. Slowly but...