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  1. Jeff Long

    NASCAR Pit Crew career not likely...

    So my 16 yr old daughter and I took a road trip last week for a college football bowl game. Easy drive being that it's all interstate and the company was great! On the way home Sunday we stopped for fuel and my daughter went inside for coffee while I pumped the gas. In another moment of pure...
  2. Jeff Long

    Fighting a case of bronchitis...

    ... and feel like 10 pounds of crap in a 5 pound bucket. Started Friday, got worse over the weekend and just won't go away. Chest and back are sore from coughing so much, fever and chills alternate enough to keep me miserable and the congestion sucks. Being sick, on top of having ALS, double...
  3. Jeff Long

    Equipment from the VA

    So I'm taking a mental inventory of the incredible amount of support equipment I am receiving from the VA (for which I am grateful beyond description) and a question came to mind... what does my CALS do with all of this when I start my dirt nap? By my estimation we'll have the following items...
  4. Jeff Long

    When you worry about the little things...

    ... the big things getcha! So, last night I’m putting air in the tire of my van (which we haven’t driven since June 2013) when I see a wasp nest inside the wheel well. Thinking “I sure as hell don’t want to get stung by one of them *****es!”, I ‘jump’ back to avoid that to which I am nowadays...
  5. Jeff Long

    Question for those with a DPS...

    Some background, a disclaimer, and a question... Background: Had my DPS "installed" in June 2013. Pretty unremarkable procedure & recovery; only issue was the grounding wire pulled out about 2 inches a few days after surgery. I'm still 'grounded' (despite what my bride would say!) so other...
  6. Jeff Long

    Specailly Adapted Housing and the VA...

    I apologize if this has been mentioned and - like everything but a good meal - I missed it! I just got a letter from the VA telling me that a review of my file, mandated on Feb 11, 2014determined that I am eligible for a Specially Adapted Housing grant. Seemed odd since I had not even applied...
  7. Jeff Long

    Fun with ALS...

    Okay, I need to know that I’m not the only one who “plays” with folks about ALS. So here are a couple of minor confessions about people I have toyed with… - Wasn’t willing to part with thousands of dollars to have genetic testing done, but at one quarterly ALS clinic visit I was asked if I’d...
  8. Jeff Long

    One day at a time, 730 times (and counting)!

    So, does one celebrate such an 'anniversary' or lament it?!?! Truth told, I'm happy as hell to make it here, and grateful for the slow progession that allows me to say it, type it, or whatever (almost!) else I want. I appreciate the committed folks who share their time and experience with ALS...
  9. Jeff Long

    One year anniversary was Sunday...

    I thought anniversaries were supposed to be happy occassions?!?! I can say it wasn't a bad day, and I tried not to get weighed down by the reminder of the diagnosed but at the same time I couldn't help thinking how blissful I was in my ignorance of all things ALS! On a mutiple guess test, I...
  10. Jeff Long

    Life is hard. But it's harder when you're stupid!

    And this week I wear the Crown of Dumb. Doc gave Lyrica to help with cramping issues but I let my prescription run out and was 'slow' about getting it refilled. I have never been a 'meds' guy and hate the idea of sucking down so many pills every day (lyrica x 4, Rilutek x 2, etc.) so in a...
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