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  1. G

    ALS+Chrones disease+peg=dehydration

    After gaining 15 pounds in a week due to water retention some adjustments have been made to the salt/ water ratio and mom seems to now be getting enough hydration through that. It has been about two weeks without an ER visit so we think this is the ticket (I can't remember the ratio but...
  2. G

    ALS+Chrones disease+peg=dehydration

    Yep! She's doing a lot better- with addition of saline solution before and after formula she's gained 10lbs but now is having difficulty because is retaining all that water! Seems like it will just be a process reducing saline to reduce the water retention but not too much so she stays...
  3. G

    ALS+Chrones disease+peg=dehydration

    I guess the crucial aspect of her Chrones is she has an illeostomy. I'm not sure what you mean about being eligible for something more substantive... She had IV hydration but we are trying to figure out how she can stay hydrated through PEG. How could the neurologist could help with the...
  4. G

    ALS+Chrones disease+peg=dehydration

    Yes she is working with a dietician. They are trying saline and potassium supplement. Thanks for your response!
  5. G

    ALS+Chrones disease+peg=dehydration

    Hi my mom has bulbar ALS and recently got a peg (not npo yet but pretty close to it). She also has Chrones disease so is suffering from dehydration. Does anyone have experience with this? Suggestions? Obviously it's a question for the doctor- she has been in hospital 3 days with no solution...
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