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    Feeding Tube

    Any pros on here that can tell me if it is normal for a patient to still feel pain, or experience slight bleeding around a feeding tube 5 months after the surgery? he is complaining that it is sore and a trickle of blood ran out from around the tube.He said it hurts a bit when syringe is pushed...
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    Respite Care

    I feel bad because I don't have a lot of experience in offering help or resources to others in need, I am just figuring out this ALS thing myself and ask for more help than I give. Now I am asking again. I am caring for my 96 year old dad who lives alone, but he is failing. I do his medicines...
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    Feeding tube recipes

    Ok, so the VA messed up and the supplements he was to use in his feeding tube were not delivered, for over 3 weeks. I bought boost, but it didn't seem like it was enough. So I turned to the kitchen for help. I started making smoothies for the feeding tube, just to get calories in. I used...
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    Final Arrangements

    wow, how awkward to make final arrangements for a spouse. Talk about the last thing I wanted to do in life. He is adamant that his body go to science, ALS research like his mother and grandfather before him. Dr. Pioro at the Cleveland Clinic took charge of his mother and now my husband. These...
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    Personality changes?

    Has anyone else seen basic personality changes in their mate? My soul mate of 34 years, who now has ALS, was the guy who tells me dinner is good every day. If I do something for him he always goes out of his way to thank me. He never makes anyone feel like they are bothering him if they need...