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    My heart is broken....

    Good afternoon to all, As you might of figured from my "title" I lost my "Chickie babe", my (step) mom. She lost her battle with ALS on Jan. 22, 2007 @ 12:20pm. Mom was three days shy of 20 months living with this disease. I have such a mixture of feelings, sad, relieved, lost and angry...
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    We are losing Chickie Babe

    Good afternoon, time for an update on mom. Things seem to be going down hill FAST now. The rash is still unexplained, better but now it's pealing like a sunburn now. Her tube site is STILL putting out the yuck. The antibiotic & yeast infection medication didn't do any good. Now we are cleaning...
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    Is this the end?

    New things, nope that is not it either. Moms diet consist of Pulmocare, Resource Juice and Water and of course all her meds. This has been her diet for at least one year. Honest to goodness she literally woke up one morning with all this happening. Dizzy, seeing double, smelly tube site wih...
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    Is this the end?

    Chickie Babe Good morning, After reading my post this morning and seeing a first grade teacher read it also, hmmm can you tell I had company while I was trying to do it?! This is another hard piece of the puzzle, my two little ones wanted mommy time too. I think they are ok with all of...
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    Is this the end?

    I wish I had a crystal ball Hi to all of you wonderful people. Thank you for all of your kind and supportive words. When my heart aches so badly I know that I can be picked up by most in this group. Huge thank you. I have been away from the group only because I have no time to chat. When I...
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    Is this the end?

    Hello to all, Some may remember me most may not. A quick update. My (step)mom was diagnosed with ALS in May of 05. What a rollercoaster ride WE have been on. I care for my mother 7 days a week. We have now gotten help in their home around the clock. Most every day is soooo draining caring...
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    AGAIN on Bowel movements

    Thanks Al Al, thank you for the kind words. That means a great deal to us who do not have ALS but are dealing with a loved one who does. As far as my "brothers" go again I thank you for the kind words. I will be seeing them this weekend at my parents house because mom will be celebrating...
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    AGAIN on Bowel movements

    Susan, thank you for your kind words. There are a few things you may not know regarding our family and mom having ALS. First, mom is really my step mother. We never really had a close relationship BUT we did not have a bad relationship either. The kind of person I am is what gets me in the...
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    AGAIN on Bowel movements

    Bowel Advice, thank you To all who responded I say thank you. As I have said many times this is one heck of a roller coaster ride. Most of the time I feel so helpless and then there is Mom.... She is "bucking" this all the way. She will not breath one word about her condition, not like she is...
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    AGAIN on Bowel movements

    Hello to all, This is Shelly from Southeast Wisc. I haven't been around because I have been very busy taking care of my mom (she is who has ALS) and my children have been out of school for the summer. They just went back... :-} No mixed emotions on that, I'm glad they did go back to school...
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