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    My heart is broken....

    Good afternoon to all, As you might of figured from my "title" I lost my "Chickie babe", my (step) mom. She lost her battle with ALS on Jan. 22, 2007 @ 12:20pm. Mom was three days shy of 20 months living with this disease. I have such a mixture of feelings, sad, relieved, lost and angry...
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    We are losing Chickie Babe

    Good afternoon, time for an update on mom. Things seem to be going down hill FAST now. The rash is still unexplained, better but now it's pealing like a sunburn now. Her tube site is STILL putting out the yuck. The antibiotic & yeast infection medication didn't do any good. Now we are cleaning...
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    Is this the end?

    Hello to all, Some may remember me most may not. A quick update. My (step)mom was diagnosed with ALS in May of 05. What a rollercoaster ride WE have been on. I care for my mother 7 days a week. We have now gotten help in their home around the clock. Most every day is soooo draining caring...
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    AGAIN on Bowel movements

    Hello to all, This is Shelly from Southeast Wisc. I haven't been around because I have been very busy taking care of my mom (she is who has ALS) and my children have been out of school for the summer. They just went back... :-} No mixed emotions on that, I'm glad they did go back to school...
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    Do I or don't I?

    Hello, Ok I need some advice and the only good advice I seem to get is from this group. The doctors don't seem to give any "heads up" on ANYTHING when it comes to ALS. First big question: do I go behind my moms back and ask (beg) her doctor to pull her drivers license? I put the question...
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    Happy to report

    Hi everyone, I am happy to report to you all that the Hospice nurse we HAD is NO LONGER..... :) Enough was enough. The last time she was out to Mom and Dads I felt way too much anger. She for the last time treated us with rudeness and I left the room. I went in by Dad and said "I'm sorry Dad...
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    Rude and heartless I will not stand for

    Good evening to all, I just wanted to give all a thank you for the kind words you sent my direction. Feeling sad and blue is a true bummer but when there are others out there that say hang in there and we are thinking of you kinda lifts one up. So BIG BIG thanks! :wink: For Pat, I would...
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    Moms feeding tube is in

    Hello to all, Sometimes I feel like dad and I are the only ones dealing with this. Then I will escape to my basement to see if there is any new post, just to kinda reassure myself we are not. So, a big thank you to all who share your thoughts, anger, confusion, tears, laughter, kind words and...
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    Feeding tube and supplements

    Hello to all: This is Shelly from Wisc. wondering if anyone has any advice on feeding tubes. I will be taking mom to the doctor on Monday for a feeding tube consult and then Wednesday she will have it inserted. Problem is I know NOTHING on feeding tubes. Pro's-- con's, I need help...
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    Rilutek again

    Good morning to all Thank you for all of your responses to my question of how do we know that the rilutek is working. After I read over the replys I thought maybe I sounded as if I didn't feel my mom was worth spending that kind of money ($900.00) a month. With all of my heart I didn't...
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