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  1. BlsdMama

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    @[email protected] - I didn’t realize you were so close to me! I’m in NE Iowa too. I assume you go to UIHC? @blitzc - we have LVT here. My PWC is rough on them too. When I turn, the wheels pull the planks apart, breaking the groove where they fit together. I love the LVT - sturdy, kid friendly...
  2. BlsdMama

    Phase 3 AMX0035

    Why such a small trial?
  3. BlsdMama

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Checking in - never seem to remember on Wednesday. We did our first big "trip" pretty much since diagnosis (& Covid) with the kids. We took them to Chicago for the weekend - Shedd's, Navy Pier, zoo, pizza, Chicago dogs, etc. All was great. I was eager to see if I could get in the pool and...
  4. BlsdMama

    8 years of really slow progression or plateau?

    @Linnhj - your symptoms plus visual occurrences- ask your neuromuscular doctor to test for glycine receptor antibodies. It’s just a blood test sent to Rochester.
  5. BlsdMama

    Bathroom remodel pics

    I feel like, morning after, I am mandated to add that it turns out if you’re 5’5”-5’6”, you might want to think the toilevator. With that and the bidet, my legs dangle. It’s less than helpful. 😞
  6. BlsdMama

    Bathroom remodel pics

    Thank you all the tips and suggestions. It will be finished this week. Things we tried to incorporate: Zero entry Sloped floor with linear drain Bidet with remote (Electrical outlet beside toilet) Toilevator Pull down bars on either side of toilet Accessible sink Touch less shampoo/conditioner...
  7. BlsdMama

    Permobil Wheelchair Speed?

    Nope. I have slow and fast buttons. I’ll take a picture when I get back but even when I push them to their max, they seem still limited by the profile and cannot go beyond that limitation?
  8. BlsdMama

    Permobil Wheelchair Speed?

    This might explain the Max of 1.5 last night. Hmm It’s the Permobil F5 VS https://www.permobil.com/en-us/products/power-wheelchairs/permobil-f5-corpus The chair has a max speed of 7.5. I have two profiles set up - indoor (max of 1.5mph) and outdoor (max of 3 mph) and both show a turtle. It...
  9. BlsdMama

    Permobil Wheelchair Speed?

    So I got my wheelchair outside for the first time ever!! I thought my wheelchair was supposed to be speedy? 3mph is my top speed? But I pressed a button or something tonight and not it will only go a top speed of 1.5 mph. What did I do and how can I fix it? I took it out tonight and I wondered...
  10. BlsdMama

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Thanks Nikki for saying that. I always mean to pop over here on Wednesdays but seem to miss it and have thought it was really only for Wednesdays.
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