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  1. SoniaT

    My Mom

    Hi, I'm so very sorry to hear about your mom. My deepest sympathies to you and your family. I lost my mom on November 8/03 and I'm still reeling from shock and loss. Please know that you are in my thoughts and I hope you will be ok. Sonia British Columbia
  2. SoniaT

    my story

    Hi Katrina, I'm sorry to hear about your dad. It is scary to watch someone you love suffer so much. My mom had ALS and I cared for her for over 2 years, I was scared and overwhelmed the whole time! Katrina I think you reached out to a really good group. People here have first hand...
  3. SoniaT

    I feel overwhelmed

    Hi Pao, I'm sorry to hear about your dad and I can understand the difficulty you are having accepting this news and feeling overwhelmed by it. When my mom was diagnosed the first thing I did was research ALS. I think we deal better with things when we understand them. If you know what to...
  4. SoniaT

    Need help finding paid caregivers.

    Hi StaceyM, I was wondering if you have been in touch with the ALS Society in your friend's area? They may be able to point you in the right direction. The people I found useful were the community care nurses out here in BC. They didn't provide me with caregiving for my mom but they seemed to...
  5. SoniaT

    being comfortable in bed

    Being Comfy in Bed Hi Winobertie, My Mom had ALS and I was her caregiver. She was often uncomfortable too. I used to have her lay on whatever side was comfy for her then pile a bunch of pillows behind her back so she would not fall back on her back. The problem with this is that she didn't...
  6. SoniaT

    Care Givers in the Later Stages of ALS

    Caregivers in the Later Stages of ALS Hi Margaret, My Mom just passed away on Nov. 8, 2003 from ALS. The last 6 months were very tough for her and me. She lost her ability to speak and more recently the ability to swallow. I never really learned how to cope with the exhaustion, the stress...
  7. SoniaT

    Hi, I'm new.

    Hello, My name is Sonia and my mom Shirley died November 8, 2003 of ALS. I joined this group to see if I could be of help to anyone who is a caregiver or a concerned friend or family member. I with the help of my husband Keith looked after Mom for 18 months, the last 6 months were the worst...