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  1. Phil M

    I'm new to the forum

    Welcome! Sorry you had to find us. Stay busy, and go make some memories!
  2. Phil M

    peg users

    Icecream was the last thing I could eat by mouth. I sure do miss eating!
  3. Phil M

    Debating a Power Chair.. WWYD

    If your dealing with medicare. Make sure you get started about 3 months prior. Thats about how long it takes.
  4. Phil M

    ALS belly

    Its just a toolshed...whats the big deal?
  5. Phil M

    Hi CJ! nice to hear from you! I am having a hard time lately. I have decided to go on hospice. I...

    Hi CJ! nice to hear from you! I am having a hard time lately. I have decided to go on hospice. I need some kind of help, as well as my family. I will let you know how it goes. I hope yall are doing well. Luv ya! Phil
  6. Phil M

    Burning and stinging eyes, Bipap Mask breakdown

    Thanks for the info! Mine feels battery acid is in them!
  7. Phil M

    Doctors and Medicare?

    Toby, thats exactly how I feel. We are just a number at Emory, and they are reluctant to stray from what works for most their patients. Ann, my primary claims to be a pain management, but I think he is worried about treating me now. He was good in the early stages. They are cracking down on...
  8. Phil M

    Doctors and Medicare?

    EI understand what your saying Carol. I'm far enough along to recognize the untouchable symptoms, but my complaints are manageable. My pain treatment has not changed in over a year. My pain is getting worse while my tolerance is too high for what I have been taking. the other problem may be as...
  9. Phil M

    Doctors and Medicare?

    We have a ALSA at Emory here in Ga. They are great when its time for equipment, new, or loaner stuff. I still want to go to clinic to support research and such, but when it comes to treating my symptoms, and quality of life...they do not hear me! I'm thinking I would get better and more...
  10. Phil M

    Hi Ann! Thanks for the hug! Imagine a big warm virtual hug right back to you! lol! I hope you...

    Hi Ann! Thanks for the hug! Imagine a big warm virtual hug right back to you! lol! I hope you are doing wonderful! XXXX
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