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  1. M

    Bowel trouble?

    I PM Nikki and she told me it is ok to post. I have neurogenic bladder & bowels and have difficulty 'going'......I found a product that's for spinal cord injury patients and works for me so I thought I would share. It's called enemeez. It helps with evacuation. (I use a laxative too) If...
  2. M

    8 years of symptoms/3 year update

    My old thread is closed again so I am updating. My symptoms started in 2006. They were mild and would come and go. Some of my symptoms still are like that. I've have been followed by a Als clinic since 2011 at which time I had hyperreflexia in my knees everything else was normal. My emg...
  3. M

    Long history with a question

    I've tried adding this to my previous thread "is there anyone like me" but it's been closed. I have a long history and my emg picked up only fasci in 2011 and 2012, diagnosed with BFS. 2013 emg and clinical was said to be COMPLETELY clean/normal by my third Als specialist. That seems strange...
  4. M

    Is there anyone like me

    I am here for a update and to ask if there is anyone like me. I will try to make it short but I have a long history. I've experienced some symptoms since 2006- lightheadedness, palps, and racing heart. My GP noted brisk reflexes and said everything was stress. My jerks/body twitches started...
  5. M

    Why wait and see?

    This might sound like a silly question but I've been wondering. After everything been ruled out, and a person doesn't have a definite diagnosis, why do neuromuscular doctor have a person, with definate symptoms, come back every six months? When there isnt anymore more 'ruling out' testing...
  6. M

    one year later

    I wanted to give a small update. My thread is closed from last year. 2011-I was sent to a als clinic last year and was told I was fine. Increased reflexes in knee 3+ and ankle 2+. My hometown neuro wanted me to do a year evaluation at the als clinic again so I went back this past July...
  7. M

    how do you find a good doctor in NJ

    I've posted here an got some good advice but how do i find a good doctor? I was given a center in nj but how does a person know if they are good? Is there anyone here from nj? It seems that we should be going to someone who knows about als, I was told my a doctor to just to go to a...
  8. M

    doctor said als after exam

    Hello everyone, This is my first post and I'm very scared. I went to a neurosurgeon yesterday, for something else, and I started to tell him about my other symptoms of brisk reflexes (4 years now), muscle twitching (three years now), lossing voice (for no reason, one year) weakness feeling in...
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