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  1. M

    Hello corvo. I am still in the process of finding out what is wrong. I do understand the fear...

    Hello corvo. I am still in the process of finding out what is wrong. I do understand the fear, but I believe If we search or read enough we always find similarities with others. :-) There are a few things my doctor is looking at and I still have more Testing to do. Being patient is hard, but we...
  2. M

    I messaged you so I know it’s the right Vicki. After my message it came up saying you are in...

    I messaged you so I know it’s the right Vicki. After my message it came up saying you are in the same Mito group :-)
  3. M

    Muscle biopsy was mentioned if genetic testing doesnt bring a diagnose. I have many symptoms..I...

    Muscle biopsy was mentioned if genetic testing doesnt bring a diagnose. I have many symptoms..I think weakness, Fatigue , and my Dysautonomia symptoms are my worse. I do have other issues with possible EDS, so I’m not sure what symptoms fit which issue.
  4. M

    Very interesting. I’ve been on cipro and Levaquin for many years before my symptoms started...

    Very interesting. I’ve been on cipro and Levaquin for many years before my symptoms started. I’m sorry the bad days are numbering your good. I am on mito cafe and another group. Thank you for taking the time for sharing some information with me.
  5. M

    Hi vickie. I’m going to a university hospital also. I just did a genetic test for...

    Hi vickie. I’m going to a university hospital also. I just did a genetic test for mitochondrial disease. I’ve had issues since 2006. How are you doing today? How is your progression? Has anything helped you?
  6. M

    Hi Vicki. I tried to send you a PM but it seems you don’t have capabilities for me to do so. I...

    Hi Vicki. I tried to send you a PM but it seems you don’t have capabilities for me to do so. I am going through testing for mitochondrial and wondering if we can chat?
  7. M

    May 1st. Dr H/P appointment. She said I have multiple issues, but not ALS. She also doesn’t...

    May 1st. Dr H/P appointment. She said I have multiple issues, but not ALS. She also doesn’t think it will morph into ALS. Some of my abnormal reflexes tell her that there is something wrong. She wants to figure it out. She’s leaning towards mitochondrial. So far all my blood work come back...
  8. M

    Note to self: my job transfer is putting me under. It’s way too strenuous. My neurologist told...

    Note to self: my job transfer is putting me under. It’s way too strenuous. My neurologist told me I can’t get disability because I don’t have a diagnosis. Neuro never did strength test, but put 5/5 on report. Only tested knee reflex. Seeing PCP for help this week. Trying to get an appointment...
  9. M

    Note to self: as my memory is bad writing here has help me keep better track. My breathing...

    Note to self: as my memory is bad writing here has help me keep better track. My breathing again has seemed to progress. Morning and throughout the day I feel the shortness of my breath. I, periodically, have been getting late morning headaches. Started limping on my right leg all last week...
  10. M

    Hi, I'm sorry you are not getting answers, but I'm glad it's not ALS. Wow!! 30 lunges, lucky you...

    Hi, I'm sorry you are not getting answers, but I'm glad it's not ALS. Wow!! 30 lunges, lucky you :-) Maybe the pain was from building that muscle. I started noticing all my muscles getting flabby over time. I can't build muscles, haven't in a very long time now. I use to have so much...
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