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  1. CoachMeg

    Shortness of Breath

    Thank you all for responding. I think I knew it was progression, just hoping I was wrong. I will continue to encourage him to use the bipap during the day. We do have the morphine and ativan on hand when he decides he wants it. He is reluctant to use the drugs too. As much as I want him to...
  2. CoachMeg

    Shortness of Breath

    hi all. just trying to get a handle on our symptoms as they currently stand. Hospice comes out twice a week now. I have noticed though that my husband is experiencing more episodes of shortness of breath. It used to just be after he ate. Now it is more frequent throughout the day. He does...
  3. CoachMeg

    Come for tea

    Hello tea friends! Hope everyone is still chugging along. Been MIA as I am home 24/7 with hubby and loving it. Facing new challenges everyday now it seems. We have added suction machine, hospital bed, and more to our battery of supplies. Doing my best to keep hubby happy and healthy! Love...
  4. CoachMeg

    Al Pettit's Passing - May 31, 2012

    Very well said, David. There is a hole that cannot be filled. He was an amazing man and although I never met him in person, I will dearly miss him. Godspeed Al. Love and light Meg
  5. CoachMeg

    Scared I have BFS

    ROFLMAO! Love it!
  6. CoachMeg

    Come for tea

    Good morning friends! Awfully quiet here...everyone hung over from the weekend?! :-) Hope today finds everyone basking in the sun and love of good family and friends. Today is a milestone for me. My last day of work for the school year. My husband has asked that I stay home with him. Of...
  7. CoachMeg

    Mother passed

    I am so sorry for your loss. Prayers for peace and strength to all. meg
  8. CoachMeg

    Beach Bum

    My deepest sympathies to all. Love and light Meg
  9. CoachMeg

    Hand brace - flat or curled?

    What you described in your original post is what my husband has. He doesn't use it often, but it did provide some relief for him at night. Daytime, he simply tries to flex his fingers as much as possible. Good luck! Meg
  10. CoachMeg

    Whine and Cheese

    Whine - I have been feeling very selfish, very woe is me, lately. I don't feel good about myself for feeling that way. Things are changing. I am drowning, as much as I try to stay strong and keep going, I just want to throw in the towel. I am just a caregiver. I am not living this disease...
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