I have been on the forums since February and just in passing read something Barbie mentioned about Benecal, or Benecalorie. I just felt this was important enough to make it's own, current, topic "just in case" is helpful for anyone.
My mom has bulbar onset ALS and so...
I've been hanging back, but reading quite a bit. I feel like I tell y'all my mom isn't
"that bad," and then I go visit them and I find myself consciously forcing myself from visibly showing my reaction... my reaction to how thin she is... how slowly she moves... how slurred her speech is...
I'm not sure where to put certain things. But I've been on a here for going on a month now, about my mom. Y'all have been so helpful and supportive. So I just wanted to provide an update for those who have followed me so far. No need to respond, y'all. Really! Some of this is just getting...
Let me preface by saying I am beyond frusturated. My mom was diagnosed (finally) on 2/18/13. I was in shock and didn't really get all the info my dad was giving. So I called them yesterday. I knew the neuro had referred them somewhere... I assumed it would be the ALS clinic here in Dallas...
My name is Jamie, and I just joined this forum and will go through and read. I've just started this process of educating (un-educating/re-educating?) myself about ALS. My mother has been struggling with all those non-descript symptoms for about a year. I urged them (my parents) to...