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    Praying for a Cure

    I wrote this when my husband died in 2013. It has been 4 years and in that time, a dear friend lost her son to this disease, and I have a dear sweet friend who is battling daily. “In a few hours, four years ago, you left us. Here I am, wide awake, dreading the morning. If I knew then what I...
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    Quantum 6 Edge Wheelchair

    Quantum 6 Edge Power Wheelchair-never used, purchased July 2013; Has battery charger with extra battery, high back seat, rear control, adjustable foot plates, elevating leg rests, and much more. $5000.00 OBO. Sadly, my husband passed away and could never use the chair.
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    Battle lost

    Sadly, my husband who was diagnosed January 31, 2013 lost his battle with ALS on November 27. Though this was a difficult year, I would gladly attend to all the details of his care all over again. My daughter quit her job to stay home with him in the later stage and my two sons assisted me in...
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    where is everybody?

    Barbie, I'm one of those "look don't write" members. I too just don't feel qualified sometimes. My husband was diagnosed Jan 31 and now they tell me he probably won't be here Christmas. Not sure how they know that since he is still eating (we feed him) and talks-although speech is getting...
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    Life Span

    I have learned over the last 8 months since my husband was diagnosed not to wonder what will come next. This disease is very untelling and unforgiving. He was diagnosed Jan 31 and in <8 months he can no longer move any part of his body. We are blessed that he can still speak and eat, but...
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    My husband has a Foley catheter. It has worked great for us and we have an attachment that we can use to change connections and use a smaller leg attached bag for concealment for going to the doctor. The catheter allows him to rest better and only has to be changed once every 3-4 weeks. I...
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    Miracle cure for bedsores or ulcers

    Thanks for the tip. My husband is bedridden now after being diagnosed Jan 31. He has developed a bed sore. Will try this. Have been using Zinc. Nurse coming out tomorrow. Also getting air flow mattress. SavannahGirl
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    New to forum

    Robin, Thanks so much. My husband is not a vet, but you are right, we live in Georgia. Since my post, my husband has rapidly declined. His PFT's are <43, down from 77 just 2 months ago. We now have a hospital bed, Bipap, and catheter with a cough assist on order. He is having laryngo...
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    New to forum

    Dear Pearshoot: Thank you so much for your reply. Unfortunately, there are no support groups here, but we are going to the multi-discipline clinic next week. I agree with you, depression is just giving in to this monster of a disease. My heart goes out to you. Stay strong. Praying for a...
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    New to forum

    Thanks. I called them today and they are setting me up.