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    No diagnosis but something is off

    Dear Nikki, thank you for your quick reply. I know it must be annoying and I truly appreciate you taking that time. I went to the ENT who looked into my throat and said everything looked fine and to my neurologist again. My neurologist did a clinical exam again and said everything is just...
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    No diagnosis but something is off

    Dear all, I didn't mean to write again especially since you have given me good reasons why I don't have to be here. Since my leg hasn't gotten worse, I actually became calmer. But I have developed a new symptom and while my brain is trying to tell me it is impossible to have leg and bulbar...
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    No diagnosis but something is off

    Dear Karen, I am sorry for offending you with my worries. I understand that it must be very frustrating to deal with people like me who are worried about having ALS while you actually have a diagnosis. I have anxiety issues (which I am addressing through therapy) and you are right that my...
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    No diagnosis but something is off

    Dear all, thank you very much for your patient replies. I've tried to calm down the other days, however there is one question stuck in my head and I just wanted to ask weather I understand it correctly. I have read that a distal onset is usually the case and I've been having trouble with a...
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    No diagnosis but something is off

    Dear Nikki, thank you for explaining. I understand what you mean now. Well, I told my pcp about having a weird feeling when rolling over with my left foot and feeling weaker when standing on my left toes than when doing the same thing on the right side. He then checked my reflexes, said they...
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    No diagnosis but something is off

    Sorry, posted too soon. Thank you all for your replies. Dear Nikki, I understand what you mean with your conclusion "...then every healthy person would have ALS". Unfortunately my neurologist does not think of me as healthy and I don't feel healthy either since I have obvious weakness. I...
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    No diagnosis but something is off

    Dear Nikki, thank you for your reply. Do I understand it correctly that you mean I would have diagnostic criteria like muscle failure and pathological reflexes and an initial thought of the neurologist that it could be ALS to make the "ruling out other diseases" count? So it could happen...
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    No diagnosis but something is off

    Dear all, thank you very much for taking the time to read this and I wish all of you the very best. I have read the stickies and I know that a lot points away from ALS, however my neurologist cannot really tell me what is going on so I thought I'd ask. I don't know if it is related but in...
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