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  1. LMargaret1

    Feedback welcome, waiting on follow up appts.

    My NCS/EMG are next Tuesday, @12:30 EST. My neurologist said she will follow up that same day with results though it will be over a video visit.
  2. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Okay, sorry about that. I won’t post anymore. I was mostly just following up, as I said I would, and expressing gratitude for the resources pinned at the top of the forum. A kind aside: it’s normal for me to cry at the doctor when I’m nervous and I’m sure for others too. I was pregnant during...
  3. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Thank you, I’m chugging water after I saw your message and reading up on what to expect. And you are right, Nikki, she said MND wasn’t ruled out (as she couldn’t do so without more info) but it wasn’t high on the list because of the physical neuro exam. I took ALL the directions from the pinned...
  4. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Neurologist was very kind and very thorough. We are actually starting with a lumbar puncture tomorrow and will talk about next steps after. Screening for new onset MS and other immune conditions and if the lumbar is not indicative of those, she plans for nerve and EMG testing. I’m exhausted and...
  5. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Thank you, Nikki. In person appointment today at 2pm. Know it’s unlikely to get any testing same day as intake, as a new patient, but looked up reviews for my doctor and department (Cleveland Clinic neurology) and am hopeful I’ll be in good hands. I’ll keep y’all posted. I also went ahead and...
  6. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Hello again, contrast MRI showed no myelin degeneration, no past stroke or TIA and no migraine activity. They said whatever was seemingly apparent on first MRI was potentially just a misread, a movement, etc. I was sort of hoping I would walk away with a diagnosis, but now I have a neurology...
  7. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Good evening everyone, just wanted to follow up with my update from MRI. Got a call from my doctor around 7, and I had a hard time following (I think doctor's talk especially fast after hours :) ) but they detected some change in my brain, they just are not sure what. So, I have to return on...
  8. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Thanks for all the valuable thoughts and insight. I will follow up when I hear more & am “on it” with the Vitamin D, as of last night. Appreciate your time & feedback! Take good care, all.
  9. LMargaret1

    Feedback welcome, waiting on follow up appts.

    Hello all! Looking for feedback, the biting and realistic kind is my favorite, as I wait for my MRI tomorrow and my neurology appointment on 5/13 (though it is virtual, which feels a bit of a waste, don't know if folks have insight on virtual intakes?). I wonder if I won't end up with an MS...
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