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  1. M

    extremely worried it's ALS

    I am sorry if I offended any of you. That was not my intention. At all. I was merely trying to place another perspective onto the the discussion regarding how best to deal with frightened and anxious members. Having been one myself. My intention was not all to cause an argument. So I am taking...
  2. M

    extremely worried it's ALS

    Thankyou for your comments. I will admit my comments were not necessarily intended for this particular post and chain of letters. However, over my time here reading information on this website, I have seen several put downs and sarcastic comments to several people in the DIHALS . I will not...
  3. M

    extremely worried it's ALS

    I'd like to just sy that any comments are appreciated. However, put downs and sarcasm do nothing for someone who is freaked out. I know grooming them and soothing them is Noones job, but this is a support forum for the un diagnosed isn't it? Thankyou in advance to people kind enough to respond...
  4. M

    extremely worried it's ALS

    Hey again, The twitching and buzzing sounds really similar to so many posts I read on the about bfs forum. Truly twitching is such an unusual feeling it is enough to worry someone even without having looked it up on the internet. However, if you google something you will find a scary...
  5. M

    extremely worried it's ALS

    Johnson84, I wrote you a nice long helpful reply but it was moderated for some reason. Not sure why? anyway, it was basically stating that so many people on here are like you....And I was there too not so long ago! Worried, frightened and stressing out....obsessively googling and trying to...
  6. M

    extremely worried it's ALS

    Hey Johnson84 - before the forum members really get started on you, can I Just say to you that most people on this forum have been in your predicament before. Freaking out, googling crazily, freaking out, googling for more research ...just in case you find something that points you away from...
  7. M

    Odd new symptom

    I get it often and it feels like waves of a vibration throughout my left leg, sometimes it goes into my foot, knee, calf, shin.... so bizarre. I know It must be something nerve or vascular related... as for yours, well I guess back to doctor again. if you are concerned. From the little I know of...
  8. M

    Odd new symptom

    Hi there, I often get that. I don't have ALS.... well if I do I just don't know it yet...just some worrying mild symptoms so far. However, if it makes you feel a bit better, vibrations in the foot, knee, leg, hip etc are quite common. If you google it you will find a lot of other people...
  9. M

    Time to leave

    it is hard to imagine what the PALS are going through and it sounds like they are probably dedicating a lot of time to typing with responses due to their inability to just do it the way we can still do it in most cases. I understand the real fear of this disease though. I stumbled upon this...
  10. M

    Still no answers

    I will keep y posted. I have found something called post viral vagal palsy which results in an abnormal uvula and reflux symptoms which is another thing I have issues with currently too. I will let you know if the doctor thinks this is anything that I may have suffered. It still doesn't explain...
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