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  1. J

    Stressed Out

    My PALS is bulbar---no speech at all, no use of right arm, limited of left arm and can walk with some assistance. I have hit a wall with what it takes to get her in bed and comfortable sitting. Long before her ALS she had hard time getting comfortable. She spends a lot of time on love seat...
  2. J

    IVIG?-- ideas to help gasping, throat spams

    Hello everyone-- Wife was diagnosed Sept 2013 with bulbar onset then that called off when they found lymphoma. She had 5 chemo but bulbar symptoms progressed so now they do not think the lymphoma was cause of neuro issues and stopped chemo. New doctorc wants to try IVIG because of sarcoid...
  3. J

    Shands Hospital--Gainsville Fl

    Anyone had any experience with Shands neuromuscular clinic--good or bad?
  4. J

    Need a doctor---please help

    My wife started mild speech problem about 1 yr ago--it has now progressed to significant slurred speech and has swallowing difficulty and other issues. She has seen a neurologist and several ENTs that did nothing other than send to speech therapy. In surfing the internet for slurred speech i...
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