All my posts go to moderation even if they don't contain triggers. Also, I get the following message when I access profiles.....
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This thread is for people to report feedback on their experience in the latest trial phase 2.
Please do not HIJACK this thread with specific questions or comments to another member. Send them a private message instead. Lets keep it clean and easy to read.
I recently started having an issue with my jaw. I have some muscle weakness and pain in my jaw. I find myself grinding my teeth and clenching my teeth. I also get a popping sensation in the temporomandibular joint (TMJ) on the right side. It gets worse in the evening but is there all day. I...
I just wanted to let everyone know that Neudexta is worth a shot if you can get your doctor to prescribe it. I have a noticable improvement in speech, not perfect but much better. I might have started to have some swallowing issues before starting Neudexta(very minor), they are gone now. I had...
I was diagnosed with ALS in June of 2012. Obviously, I was hoping the doctors were wrong but I don't think they were. My onset was in the left leg with a bit of foot drop. I then started to have a little slurred speech. My biggest problem though is spasticity in the legs. I am starting to think...
This is my experience with weakness in the early goings...
I know when I was being diagnosed, one of my biggest concerns was the "clinical weakness" and I never could get a good description or definition of what it was. I swore up and down that I did not have weakness. Now, that I look back, I...
First off, Happy New Year to everyone.
Unfortunately for me the new year has brought on an unwelcomed retirement. Disability has taken the place of my work day. I did it mainly because I want to fight this terrible disease with everything I got. Working 60 hours a week was not helping. I'm a...
So, I went to see Dr. Hiroshi Mitsumoto at the New York Neurological Center at Columbia University. He agrees with my neurologist and said it is "likely" that I have ALS/MND. This was really upsetting news. He did say that it looked to be very slow progressing so hopefully he is right. He also...
First off, let me say I am in no way a hypochondriac. I have high cholesterol and acid reflux disiese but other than that, I hardly ever get sick. I do have a pain in my side for over six years but the doctors couldn't find anything so I just live with it. I am 44 years old and fairly athletic...