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    Not to do with ALS but amazing....

    Just want to share this didn't know where to post it.... Check it out it's really something different :) This is a link to Ukraine's winner of Got Talent and she truly does have.... Kseniya Simonova - Sand Animation (Україна має талант / Ukraine's Got Talent) YouTube- Kseniya Simonova -...
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    Progress in research around Familial ALS

    http://news.bbc.co.uk/1/hi/health/7914652.stm Getting there slowly... Dee
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    Research

    Hi All Here's a link: http://www.alsa.org/news/article.cfm?id=1386 For the following article December 9, 2008 ALS Association Co-Funds Study Showing Boosting the Body’s Detoxifying System Counteracts Nerve Cell Loss in ALS Mice; New Therapies Suggested Hope you all (who celebrate it..)...
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    A Peaceful Death

    My Dad died on Tuesday 10 days after getting pneumonia. We cared for him at home. Dad really did not want to go to hospital or hospice. The last few days were so peaceful and he did not need morphine. I sat with him from 6 in the morning on the day he died talking to him and playing...
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    Research UK

    Hi This is a link to an article about research in UK re: ALS Might be interesting to some. Not a cure I'm afraid. http://news.bbc.co.uk/1/hi/health/7733202.stm Donna
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    Private messages

    Has anyone had a private message from: Manczak Georg? I have trying to promote or sell something. The contact with me was unsolicited and I strongly object to this. If anyone had a real cure for ALS or something that would help people with ALS they would not need to contact people affected by...
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    Progression too fast

    I don't know where to start... my dad has bulbar symptoms quite advanced and up to now it's all affected him from the waist up. Now he has fallen twice in 2 days and I dread that this means a rapid progression to his legs. I feel so sad and I can't take this philosophically as I have done with...
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    Lightwriters/ communication aids any info please?

    Hi I wonder at what stage do aids such as lightwriters become useful? My Dad has PBP type symptoms though no final diagnosis. His speech is quite unclear and he often writes things down in shops. More recently he's stopped using the phone pretty much. Although he's also brave and independent...
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    Familial MND ALS please help!

    Hi I'm new to this. We have familial MND in our family. 3 of my Dad's brothers and sisters died from MND/ALS so we know how bad it can be. I'm looking for any helpful or positive suggestions, anything at all. I'm mostly concerned for my Dad now who may have MND himself and is having tests in a...
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    Can PLS be familial?

    Hi I'm new to this. We have familial MND in our family. 3 of my Dad's brothers and sisters died from MND/ALS so we know how bad it can be. I'm looking for any helpful or positive suggestions, anything at all. I'm mostly concerned for my Dad now who may have MND himself and is having tests in a...
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