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    My Mom has ALS

    Since Mom was Gone... Id like to thank everyone for the support.. All the kind messages and emails. I'm not coping well and at this point i don't know what to do... I've been leaving on my own world...full of sadness disappointments and sorrow... As much as I understand she was suffering.. I ts...
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    My Mom has ALS

    Another Angel in Heaven... She's not longer in pain... But my Heart is broken :( R.I.P My gorgeous Mom who fought this horrible disease with a smile on her face... I miss you so much and I know this pain will last forever.
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    She's not longer in pain... But my Heart is broken :( R.I.P My gorgeous Mom who fought this...

    She's not longer in pain... But my Heart is broken :( R.I.P My gorgeous Mom who fought this horrible disease with a smile on her face... I miss you so much and I know this pain will last forever...
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    I'm sorry to hear about your father...how you said, we both are going thru the same phase and I...

    I'm sorry to hear about your father...how you said, we both are going thru the same phase and I know how horrible it is...I'm trying to be strong and I know it can be hard at times.. Be strong for him!! You are in my prayers❣ This forum has helped me a lot and I'm sure you can get some comfort...
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    ALS Bulbar On set .. Moms O2 level is low.. Any help?

    How does the hospice program works where you live? I'm not quite sure if it is the same...but from what I googled its way better than where I live...
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    Do you think people know when the end is near?

    I don't know what to say to you :( my mom started talking about that she's going soon too.. Its devastating..She's very pale, got no energy, she has lost 14kg since diagnose.. She's 60yo has been always the best mother in the planet.. my best friend, my everything... I can imagine how you're...
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    Thank you Trina! It's very difficult... Mom and I always had the best mom-daughter...

    Thank you Trina! It's very difficult... Mom and I always had the best mom-daughter relationship.. Even when I left home to study about 6 y ago we would still talk on the phone every single day.. I remember when life was happy and we would do amazing things together... We had so much planned...
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    My Mom has ALS

    Hi Tillie, wow I can imagine how hard it was/is for you... I've been talking to my mom explaining the reasons why we should be more careful... I definitely need a person to help... And she seems to understand...While we wait I won't do anything that can put her in any risk... They already go...
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    ALS Bulbar On set .. Moms O2 level is low.. Any help?

    I hope you all had a Peaceful new Year! It's very hard for me as a daughter to see her crying just from hear the word Bipap... and like I say it won't cure my loved mom..( I understand it's meant to give some sort of comfort) but in her case it's a nightmare :( Hospice program? I'm not sure...
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    My Mom has ALS

    I hope you all had a peaceful New Year ♥ It's a very very sad disease... Everything happens so fast and so cruel.. Mom is 60yo and we had so much planned.. Now she seems a lot weaker, her O2 levels are very low( she refuses to use Bipap), she can't barely stand up , WE fall a lot, twice just...
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