She died at a hospice house Thursday night. I'm so sad and mad at ALS. She had dropped a lot of weight and stopped eating/drinking day before Thanksgiving. She lived 8 days. Diagnosed 1/19.
So my PALS is my partner. She was diagnosed in January and is going down hill fast.
She needs assistance with her rollator walker and without her foot drop braces on she is
very slow and to be honest it feels dangerous.
At some point soon we will be needing a wheelchair. Her doctor is on...
Sharon was diagnosed officially in January.
She has the C9 abnormality. Her dad developed FTD 3 years ago so that led the team to genetic testing.
Her 2 brothers have decided not to get tested, which I'm conflicted about as they have children. I think I would want to know but it's one...
My girlfriend was told that her symptoms are consistent with ALS a week ago at Mass General Hospital. As I stated in previous posts I have known for a while...and her dirty EMG sent us to Boston for the second opinion/confirmation.
The first few days were spent crying/ holding her. She now...
I've known in my heart that this was als.
1 year ago she and I were snowmobiling. Symptoms first started around June. She needs help getting into my truck now, has slurred speech. And can not swallow a pill, but she can't open the pill bottle anyhow.
We are referred to mass general.
First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease.
A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now.