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    Question

    No ma'am plumo at LSU took me off o2 my PCP is one who wanted me o2 I'm not on o2 any more. Sorry I'm not good with all this Dr stuff have gotten to the point were I shut down when they start talking to me. I don't understand most of what they say and they all seem (Dr) to have different idea on...
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    Thank you for your reply. The Dr I'm seeing is the clinic director and the plumo I'm seeing is also on staff at the LSU ALS clinic he is also on staff at Ochsner hospital in New Orleans he's great. Tulane will be my next step
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    Thank you for the info. No vision problems and I don't feel any better after I rest. I wake up with headache's and feeling the same if not worse than when I went to bed. It doesn't matter if I sleep 6 hour's or 12 hour's still don't feel any better. my main concern is for my wife she is a small...
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    Thanks gooseberry when i was in hospital in Dec 2013 for what they thought was pneumonia that's when they found right diaphragm was paralyzed and some paralysis on left diaphragm. They did MRI and found phrenic nerve it was in tact and not damaged neruo told me it could only be a motor neuron...
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    Thank you for your reply went to lsu med because they are ALS clinic close to me. I live in small town in Louisiana the drug is pyridostigmine br 60mg. No have not started taking it yet there was a screw up with Dr. they didn't call it in till fri last week. I spent thrus fri and sat in hospital...
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    atsuqi and Nikki thank you for your reply's sorry if I'm doing this wrong not real good with computer's. the one thing I don't want is ALS or to offend any one on this site ya'll have enough to deal with that is why i have not posted till now i have been following this site since oct. of 2014...
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    No having trouble with fine detail work with hands I'm a mechanic hands don't work the way they did its hard for me to start nuts and bolts any more. Walking is difficult I stumble and trip a lot i have to be careful were i walk my left ankle is very easy to turn i turned it 3 times in the last...
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    I have had all blood test done have seen heart Dr. had several mris of brain and spine done. Am now see lung Dr. who specializes in AlS I have a paralyzed right diaphragm and the left diaphragm shows some paralysis. I'm on a bipap machine at night the settings have been up on it twice in the...
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    Question

    I was diagnosised with ALS on may 6, 2014 by a neuromuscular neurologist he was sure I had ALS. He did emg it showed active generalize disorder of motor neurons, their axons, or both thats a quote from emg report. After a year finally got an appt with ALS clinic at LSU med center in New Orleans...
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