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  1. JimInVA

    For better or for worse...

    For better or for worse... So much of love and life is echoed within those words. I first pledged to them in marriage but find they are also much a part of every day living. In fact, I'm about to embark on another "for better or for worse" chain of events. I've scheduled back surgery for...
  2. JimInVA

    Medicare & Enteral Supplies

    Darcey turns 65 shortly and qualifies for Medicare. As we've been shopping Medicare Part D supplements, I'm told that our agent was unable to find Jevity 1.5 (the formula that she currently uses) listed as a covered item in any of the supplemental choices that he has available. One possibility...
  3. JimInVA

    Shifting Sands...

    Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...
  4. JimInVA

    Eyegaze Edge - Anyone familiar with this?

    Greetings! We're looking at the Eyegaze Edge from LC Technologies and wondered if any of you had any experience with and/or comments about it. Our first Tobii of about 4 years ago was pretty much worthless... so we'd like to not duplicate the process. Any comments would be much appreciated...
  5. JimInVA

    Controlling The Television

    Our TV setup is somewhat complicated. We have Cable TV (Verizon FIOS) which feeds into Verizon's Cable Control Box. That feed is then routed to the Onkyo Audio Receiver (which allows me control of various other sources... ROKU, BlueRay, Bluetooth, etc.). I have the Universal Remote Control...
  6. JimInVA

    Air Compression Calf Massager

    Because of ALS, Darcey's legs often ache or itch. Her left leg, in particular, bothers her the most. She likes for me to push against her shin with the heel of my hand. She says that the pressure just feels good. My daughter has her rabbit staying with us. Darcey likes having the rabbit...
  7. JimInVA

    Online Military Exchange Benefits - Update

    In a previous post by Nikki, she made us aware of an expansion in access to the Online Exchanges being granted to veterans with Honorable Discharges. Here's her post... https://www.alsforums.com/forum/military-veterans-va/39259-online-exchange-shopping-benefit.html I followed instructions and...
  8. JimInVA

    Catching Up!

    Greetings good ladies and gentlemen! I don't post here as often as I'd like... but, for me, time is a privilege and not a promise. From time to time, I feel it important to chronical where we are, currently. I honestly don’t know if I do this for you, the reader… or for me, the CAL. One day...
  9. JimInVA

    How We're Doing - My Facebook Post

    People often ask how my wife, Darcey is doing... and I'll typically answer "She's holding her own pretty well!" I honestly don't mean to be "put offish" with that answer... its just difficult to describe where she's at in her ALS journey or how exactly we work together each day to "keep...
  10. JimInVA

    A Moment of Inattention...

    Started as a beautiful morning! I was up at 4AM to get a jump on the day. I'm able to do a lot of work on client computers, remotely. So early morning, before Darcey is up and about, works great. At 7:30AM, I went upstairs and greeted Darcey with hugs, kisses and smiles. The sun was...
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