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  1. canmark

    Mom with ALS: My disease will make my daughter stronger

    Saw this on CNN.com: Mom with ALS: My disease will make my daughter stronger - CNN.com
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    Dignitas

    Just came across this now-closed thread (https://www.alsforums.com/forum/general-discussion-about-als-mnd/11111-pbs-frontline-show.html) about PBS Frontline’s program about assisted death. Unlike some of the people who posted on that thread, I was very comforted by that program. I am actually...
  3. canmark

    Accessibility – AXS MAP

    My cousin recently tipped me off to this website which allows users to rate and review businesses, restaurants, stores, etc., on their accessibility. It’s a great idea for those of us with mobility issues, although I’m finding the website a bit difficult to figure out and there aren’t many...
  4. canmark

    Speech issues

    I’ve recently noticed some issues with my speech, and I’m wondering if anyone has experienced similar. My ALS progression has been pretty much exclusively LMN. That is, my body is weak and limp. I’m not able to walk, dress, bathe or feed myself. However, I am able to eat and speak normally. What...
  5. canmark

    Canadian Supreme Court allows doctor-assisted suicide in specific cases

    CBC: Supreme Court allows doctor-assisted suicide in specific cases
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    Local News Anchor Announces ALS Diagnosis and Retires in Touching Broadcast

    TIME: Local News Anchor Announces ALS Diagnosis and Retires in Touching Broadcast
  7. canmark

    Still Alice co-director with ALS

    In her Golden Globes acceptance speech (Best Actress for Still Alice, a film about a woman with Alzheimer’s), Julianne Moore mentioned how one of her co-directors (they are a gay couple) has ALS. A Google search turned up this NYTimes article: The Makers of ‘Still Alice’ Have Their Own Story of...
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    Dreams

    I have a question for PALS about dreams. Do you have ALS in your dreams? In real life I am no longer able to walk, yet in my dreams I walk, run and drive a car like I was in normal health. I’m in a wheelchair all day, yet I’ve never dreamed about myself being in a wheelchair. Do other people...
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    Ethnic background

    As someone who participates in various online ALS forums (ALS forums, PatientsLikeMe, Facebook) it strikes me that most people (judging by profile photos) participating in these forums are Caucasian. When I’ve gone to my ALS clinic (Sunnybrook in Toronto, Canada) and attended a few ALS support...
  10. canmark

    Bidet toilet seat

    I’m thinking of getting myself a bidet toilet seat. Does anyone have recommendations for brands/models? I normally use a wheeled commode chair which is rolled over the toilet (with the seat up) – would this still work with the bidet toilet seat?
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