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  1. C

    The Tobi is a special computer that works by eyegaze or blink, it can also serve as tv remote...

    The Tobi is a special computer that works by eyegaze or blink, it can also serve as tv remote, phone and many other helpful task. However, I have yet to figure it out, very technically challenged.
  2. C

    First time back on the forum for awhile and nice to hear from you. First time on...

    First time back on the forum for awhile and nice to hear from you. First time on the forum for awhile, nice to heaar from you. Sounds so familiar with feeding yourself, its a bummer when your so hungry and cant eat. Have you considered the G-tube? Love to hear your feelings on...
  3. C

    So sorry to hear about your ankle, shortly after our last email I hurt my knee trying to do the...

    So sorry to hear about your ankle, shortly after our last email I hurt my knee trying to do the same. Ordered the Hoyer Lift next day. My core has weakend and am now in need of more equipment, oh all the amount of equipment, need a larger house. My hands are on their way out also, so trying to...
  4. C

    Thank you for your speedy response, you are truly the helpful member. The OT is scheduled for...

    Thank you for your speedy response, you are truly the helpful member. The OT is scheduled for next week but the rapid decline has made it hard to stay a step ahead. As you know, it's very difficult to lose your dignity so suddening. No I don't have a Hoyer lift or a transfer board but we did...
  5. C

    What's next in the progression?

    It has been less than a month that I have gone from being able to transfer with only the help of the walker to being virtually helpless. Diagnosed Jan.2012, it has been a gradual decline, giving me time to adjust to the changes. Then without warning I lost all strength in my legs and my upper...
  6. C

    Metamorphosis: and it Ain't Purty!

    Timing is everything! I was just looking for past threads that dealt with womens beauty needs and how to maintain in the wonderful world os ALS. My body has also gone south but what I was wondering is how we are to do our makeup and hair and of course waxing and manicure and pedicure and on and...
  7. C

    I'm so tired of the suffering.

    Thank you Jim for the info about the book "Final Exit", I just ordered it. The only states that assisted suicide is legal are Oregon and Washington neither of which I live in.
  8. C

    I'm so tired of the suffering.

    Having just been diagnosed with ALS I am at peace with my death but not with the way ALS takes my life. I could rest so much better knowing that I have some say in how my final exit might play out. The last assisted suicide by Dr. Kirvorkian was a ALS sufferer. That action put him in...
  9. C

    Frustrations and Blessings

    FRUSTRATION; Not being able to speak clearly BLESING;When I do speak, people listen!
  10. C

    New and an ostrich

    Thank you Lizzie for your practical advice laced with optimism, it really hit home. I also now walk hand in hand with my husband, I was always insuch a hurry before but now ALS has slowed me down and I need his hand for support. God works in mysterious ways it appears.
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